Retinitis Pigmentosa Clinical Trials

Retinitis Pigmentosa studies recruiting patients for novel treatments. Filter by phase, distance, and inclusion criteria to find your perfect retinitis pigmentosa clinical trial.

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Patient Q & A Section

Please Note: These questions and answers are submitted by anonymous patients, and have not been verified by our internal team.

Is there a cure coming soon for retinitis pigmentosa?

There is no cure for Retinitis Pigmentosa (RP). However, various approaches are available to help patients live with the condition and its symptoms. Living with vision loss may include help from experts, therapists, and the use of low vision aids. There are also clinical trials designed to hopefully restore vision for RP patients and potentially other retinal diseases. Power can help find an available clinical trial near you.

Can retinitis pigmentosa be cured with gene therapy

Gene therapy may help restore lost vision or slow down the effects of conditions that lead to vision loss. However, there is no gene therapy technique yet that claims to cure Inherited Retinal Diseases (IRD) like Retinitis Pigmentosa (RP). There are several clinical trials available that target IRDs. Power can help you find one near you that is tailored to your current condition.

How quickly does retinitis pigmentosa progress?

Progression of Retinitis Pigmentosa (RP) varies per person. Even family members may experience loss of vision at a different rate. A patient may experience a complete vision loss at 30 years old, while some may maintain functional vision up to age 80 or more. There are treatments available to slow down the effects of RP. Clinical trials to restore vision are also available. Visit Power to find one near you.

What vitamins are good for retinitis pigmentosa?

Since Retinitis Pigmentosa (RP) directly affects the retina, the light-sensitive part of the eye, Vitamin A can help slow down its symptoms. Vitamin A is a component of rhodopsin, which helps in seeing in low light conditions. You may also look for clinical trials intended for RP; visit Power to find one that matches your current treatment.

How long is the average lifespan of a person with retinitis pigmentosa

Individuals with Retinitis Pigmentosa (RP) lose their vision as the condition progresses, but RP does not directly affect a patient's life expectancy. An individual with RP can live up to 80 years or more with functional vision. There are clinical trials that target slowing down the symptoms of RP; to find one near you, visit Power.

What does it look like to see with retinitis pigmentosa

Early signs of Retinitis Pigmentosa (RP) include difficulty seeing at night or in low light conditions. As the condition progress, an individual with this disorder loses peripheral vision, eventually leading to blindness. There are clinical trials that help slow down the effects of RP. You may visit Power to find one that matches your needs and location preferences.

Who is most likely to get retinitis pigmentosa

Retinitis Pigmentosa (RP) is an inherited disorder. Individuals with parents or relatives that have RP may inherit the disease. It is also possible to get RP when both parents carry the recessive gene. RP is estimated to affect 1 in 4000 individuals in the US and Europe. If you are interested in participating in clinical trials in your preferred location, visit Power to learn more.

Is retinitis pigmentosa always inherited?

Retinitis Pigmentosa (RP) is an Inherited Retinal Disease. It can be passed on from a parent with RP or inherited from both parents who carry the recessive gene. Symptoms may manifest in children as early as age 10. You may search for clinical trials in your preferred location through Power.

Is vitamin E bad for retinitis pigmentosa?

A randomized supplementation trial for Retinitis Pigmentosa (RP) patients showed a significant decline in retinal function in patients given 400 IU/d of vitamin E. The study also suggests that when taken daily, 400 IU of Vitamin E can cause adverse effects. When considering supplements for RP patients, it is best to seek an expert's advice. You may also visit Power to get help in finding clinical trials that are suitable for your condition.

How is retinitis pigmentosa prevented?

Retinitis Pigmentosa (RP) is an inherited condition estimated to affect 1 in 4000 in the United States and Europe. As there are no known ways to prevent this disease from being inherited, a family bearing this condition may consult an expert before deciding to conceive children. Diagnosed patients may participate in clinical trials to slow down the loss of vision. If you are interested in participating in a clinical trial, Power can help you find one near you.

How do they test for retinitis pigmentosa?

An ophthalmologist can diagnose Retinitis Pigmentosa by examining the retina through a Dilated Eye Exam. They may also obtain an image of the retina through a Retinal Photograph or Fluorescein Angiography. A Visual Field Test can check if the peripheral vision is affected. If diagnosed with RP, patients may participate in clinical trials to help manage the condition. Power may assist you in quickly finding suitable clinical trials near you.

Is retinitis pigmentosa more common in one ethnicity?

Retinitis Pigmentosa (RP) does not have a direct link to one's ethnicity. It is, however, a hereditary condition-an individual is likely to have RP when one of the parents or their family members is affected. There is no known cure for RP, but there are clinical trials available for new potential treatments. To find one near you, visit Power. It is the quickest way to find clinical trials that fit your needs.

How do you slow the progression of retinitis pigmentosa?

Since there is no known cure, a common approach to this condition is to manage the symptoms by using low visions aids like side-vision awareness glasses, magnifiers, and special reading glasses. Eating food rich in Vitamin A and taking Vitamin A supplements may help improve retinal health. There are also clinical trials that target slowing down the progression of Retinitis Pigmentosa. To find a clinical trial, and find out if you are qualified to participate, you may visit Power.

Can Vitamin A deficiency cause retinitis pigmentosa?

According to the World Health Organization, night blindness or difficulty or the inability to see in low light conditions is a clinical sign of Vitamin A deficiency. Good sources of Vitamin A are food rich in beta-carotene like yellow, red, and green (leafy) vegetables. Night blindness, along with loss of peripheral vision, can be a sign of Retinitis Pigmentosa (RP). Patients diagnosed with RP may also get help from Power to find clinical trials for potential new treatments.

How do I know if my child has retinitis pigmentosa?

When your child finds it significantly difficult to navigate through poorly lit spaces or takes a longer period to adjust to changes in lightning, it is possible that they are suffering from night blindness. A limited visual field may also cause the child to trip over things even in well-lit areas. If you or your spouse has known cases of Retinitis Pigmentosa in the family, it is best to bring your child to an ophthalmologist for testing. Diagnosed patients may participate in clinical trials to potentially slow down the effects of RP. Power can help match you with clinical trials near you.