Treatment for Quality of Life (QOL)

Phase-Based Progress Estimates
1
Effectiveness
1
Safety
The Hospital for Sick Children, Toronto, Canada
Quality of Life (QOL)+2 More
Eligibility
< 65
All Sexes
Eligible conditions
Select

Study Summary

This study is evaluating whether a child and parent can complete a symptom screening tool together.

See full description

Eligible Conditions

  • Quality of Life (QOL)
  • Symptom Screening
  • Pediatrics Cancer

Treatment Effectiveness

Effectiveness Progress

1 of 3

Study Objectives

This trial is evaluating whether Treatment will improve 1 primary outcome in patients with Quality of Life (QOL). Measurement will happen over the course of Immediately after the intervention.

Immediately after the intervention
Symptom Screening in Pediatrics Tool (SSPedi) total score

Trial Safety

Trial Design

0 Treatment Group

This trial requires 420 total participants across 0 different treatment group

Trial Logistics

Trial Timeline

Approximate Timeline
Screening: ~3 weeks
Treatment: Varies
Reporting: immediately after the intervention
This trial has the following approximate timeline: 3 weeks for initial screening, variable treatment timelines, and roughly immediately after the intervention for reporting.

Who is running the study

Principal Investigator
L. S.
Lillian Sung, Principal Investigator
The Hospital for Sick Children

Closest Location

The Hospital for Sick Children - Toronto, Canada

Eligibility Criteria

This trial is for patients born any sex aged 65 and younger. You must have received 1 prior treatment for Quality of Life (QOL) or one of the other 2 conditions listed above. There are 4 eligibility criteria to participate in this trial as listed below.

Mark “yes” if the following statements are true for you:
Child has diagnosis of cancer or is a hematopoietic stem cell transplant (HSCT) recipient
Child is inpatient or outpatient
Child and guardian both understand English
Child is 4 to 18 years of age

Patient Q&A Section

What is pediatrics cancer?

"The incidence of [pediatric cancer](https://www.withpower.com/clinical-trials/pediatric-cancer) in Korea was 20.6 per 100,000 in 2006. About 11% of these cancers were childhood cancers, with 4.7% being malignancies of the blood and marrow. The most frequent cancer in children under 15 years of age was leukemia, followed by neuroblastomas and hepatoblastoma, as well as brain and nervous system tumors. Lung cancer was the most common cause of cancer fatalities in children." - Anonymous Online Contributor

Unverified Answer

What are common treatments for pediatrics cancer?

"Treatments are mainly supportive care given to individuals with pediatric cancer. For the sake of health and safety of pediatric patients, the quality of care is critically related to the individualization and optimization of the treatment for each patient. Thus, it is crucial to identify the most frequent, and sometimes challenging, situations." - Anonymous Online Contributor

Unverified Answer

What are the signs of pediatrics cancer?

"The first symptom of cancer in children is typically pain and swelling. Most patients present with pain with or without swelling at palpation. Occasionally, the cancer can produce a cough, which is a sign of lung cancer. The most common types of cancers are leukemia/lymphoma and brain tumours. Patients might be febrile for the first time as a sign of solid tumour or malignancy. Children with pain alone as their presenting symptom need not be assessed first. They might just wait as they are required to undergo a biopsy under general anaesthesia so that the sample can be processed for the laboratory and a correct diagnosis can be made." - Anonymous Online Contributor

Unverified Answer

How many people get pediatrics cancer a year in the United States?

"Pediatrics cancer (both leukemia/brain tumors and ALL are very serious diseases. The National Cancer Institute lists ALL as being the most common cancer in children under 20 years of age. For children in the 12-19 year and 20-29 year age groups, only ALL is listed as having the strongest rate of incidence. The National Cancer Institute also lists ALL as the second most common cause of death in children under 20 years old. Pediatric cancer patients are often hospitalized with other health problems. Patients with leukemia are most commonly treated at academic medical centers. However it is important to note that only a small percentage of pediatric cancer cases are treated at academic centers." - Anonymous Online Contributor

Unverified Answer

Can pediatrics cancer be cured?

"Even if the exact risk or cure cannot be proven, early diagnosis, early treatment and effective management are feasible. Effective treatment reduces the risk of cancer and mortality rates. With appropriate treatment, many will survive to adolescence and have a normal life. Early treatment may affect the course of chronic diseases and/or reduce the cost of health care of patients who need lifelong treatment." - Anonymous Online Contributor

Unverified Answer

What causes pediatrics cancer?

"Pregnancy, birth trauma, vaccinations, birth defects, and genetics are all considered to be triggers of [pediatric cancer](https://www.withpower.com/clinical-trials/pediatric-cancer). These factors can be easily controlled to potentially prevent pediatric cancer. However, early detection of cancer in children is the best way to deal with this disease by stopping it in its beginnings." - Anonymous Online Contributor

Unverified Answer

What are the common side effects of treatment?

"The side effects of chemotherapy varied among different drugs, age groups, and disease stages. Side effects were more common for children than for adults. The more frequent side effects were nausea, vomiting, diarrhea, oral mucositis, anemia, and skin rash. Further studies are required to evaluate the relationship between these side effects and prognosis. In a recent study, findings of randomized clinical trials should be the guide of treatment in children." - Anonymous Online Contributor

Unverified Answer

How does treatment work?

"For children with cancer who are being considered for stem cell transplantation, the overall survival varies widely. As a part of the clinical assessment of potential recipients, physicians need to assess the ability of treatment to improve or deteriorate survival. The goal is to provide a more tailored treatment plan for each patient." - Anonymous Online Contributor

Unverified Answer

What is treatment?

"The treatments of pediatric cancer have transformed during the past 40 years from the use of chemotherapy alone, to multimodality therapy approaches with a combination of surgery, radiotherapy, and chemotherapy. The overall survival rate for pediatric cancer patients is approximately 90%, which is about the same for most tumors. Unfortunately, the disease recurs in the post-treatment setting in about 10-12% of patients, which may reflect the use of current chemotherapy protocols and the limitations of current treatment approaches. Research is underway to identify patients who are most affected by adverse outcomes with treatments, and to develop a new generation of multimodality therapies. [Including Power(https://www.withpower." - Anonymous Online Contributor

Unverified Answer

What is the primary cause of pediatrics cancer?

"A variety of risk factors including: diet and body mass index, exercise, exposure to tobacco smoke, obesity, infectious organisms, and the use of certain medications have been identified as being causative for certain [pediatric cancer](https://www.withpower.com/clinical-trials/pediatric-cancer). [Cancers of the mouth, pharynx, or larynx (HNSCC); orofacial (HNSCC); non-Hodgkin's lymphoma] The primary cause of pediatrics cancer remains unknown." - Anonymous Online Contributor

Unverified Answer

What is the latest research for pediatrics cancer?

"There have been many advances in the treatment of [pediatric cancer](https://www.withpower.com/clinical-trials/pediatric-cancer)s, including better understanding about how cancers develop and progress to maximize treatment outcomes while minimizing toxicity. These advances provide potential for improved patient outcomes. There have also been numerous advances in the understanding of cancer biology. As patients with cancer grow older, they become more likely to experience a number of unpleasant effects including fatigue, nausea, an increase in the effects of medications, and pain. More research is needed to elucidate the best way to manage patients with pain when they are most likely to require it. Research has also been ongoing to determine best drug regimens for children with brain tumors. While treatment for childhood cancers remains effective, treatment side effects remain as concerns for caregivers." - Anonymous Online Contributor

Unverified Answer

What does treatment usually treat?

"Most patients are satisfied with the current standard of care. Although the treatment is effective in many patients, there is room for improvement in some procedures." - Anonymous Online Contributor

Unverified Answer
Please Note: These questions and answers are submitted by anonymous patients, and have not been verified by our internal team.
See if you qualify for this trial
Get access to this novel treatment for Quality of Life (QOL) by sharing your contact details with the study coordinator.