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Remote Genetic Counseling for Cancer Survivors (ENGAGE Trial)
ENGAGE Trial Summary
This trial will test whether an adapted model of remote delivery of genetic services can increase uptake of genetic assessment and testing among childhood cancer survivors.
ENGAGE Trial Eligibility Criteria
Inclusion Criteria
You may be eligible if you check “Yes” for the criteria belowENGAGE Trial Timeline
Treatment Details
Study Objectives
Outcome measures can provide a clearer picture of what you can expect from a treatment.ENGAGE Trial Design
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Who is running the clinical trial?
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- I survived a CNS tumor, Sarcoma (not Ewing's), Hepatoblastoma, or Leukemia as a child.I have completed genetic testing for my condition.I can understand and communicate in English or Spanish.I am a childhood cancer survivor with a significant family history of cancer.I do not have any mental or severe physical conditions that prevent me from understanding this study.
- Screening: It may take up to 3 Weeks to process to see if you qualify in this trial.
- Treatment: The duration you will receive the treatment varies.
- Follow Ups: You may be asked to continue sharing information regarding the trial for 6 Months after you stop receiving the treatment.
- Group 1: Remote Telegenetics: VIDEOCONFERENCING (ARM B)
- Group 2: Remote Telegenetics: TELEPHONE (ARM A)
- Group 3: USUAL CARE (ARM C)
- No Placebo-Only Group - All patients enrolled in this study will receive some form of active treatment.
Frequently Asked Questions
How many participants are registering for this trial?
"Affirmative. Clinicaltrials.gov indicates that this research has been listed since August 16th 2021 and is currently seeking 450 participants from 3 different clinical sites as of March 10th 2022."
What results is this clinical experiment hoping to yield?
"This research study, which will last for 6 months in ARM C, monitors the Genetic Knowledge Scale as its primary outcome. Secondary objectives include measuring changes to Patient Reported Outcome Measurement Information Systems (PROMIS) Anxiety levels, patient uptake of genetic counseling and testing services, and changes to health behaviours derived from Behavioral Risk Factor Surveillance System Questionnaire & Health Diet Survey Dietary Guidelines Supplement surveys."
Is there still availability for individuals to participate in this research?
"Confirmed, this clinical trial is currently open for recruitment. It was initially published on August 16th 2021 and the latest update took place on March 10th 2022."
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