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Decision Support for Dementia Caregivers
N/A
Recruiting
Led By Kalisha Bonds Johnson, PhD RN PMHNP
Research Sponsored by Emory University
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial Must have
Be older than 18 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up 0-month, 1 month, 3 months
Awards & highlights
Study Summary
This trial is designed to help African American daughters make healthcare decisions for their parents who are living with memory loss to improve the quality of life of African American families.
Who is the study for?
This trial is for African American adult daughters aiding their parents with mild to moderate Alzheimer's or dementia. Participants must be able to use email and the internet, speak English, and help with healthcare decisions. Excluded are those with major neurological diseases other than Alzheimer's or severe psychiatric disorders.Check my eligibility
What is being tested?
The study aims to create a decision-making program tailored for African American families where daughters make healthcare choices for parents with memory loss. It involves surveys/interviews about caregiving experiences and testing a culturally specific prototype intervention.See study design
What are the potential side effects?
Since this trial focuses on interviews and surveys rather than medical treatments, there are no direct side effects from medications or interventions typically associated with clinical trials.
Timeline
Screening ~ 3 weeks3 visits
Treatment ~ Varies
Follow Up ~ 0-month, 1 month, 3 months
Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~0-month, 1 month, 3 months
Treatment Details
Study Objectives
Outcome measures can provide a clearer picture of what you can expect from a treatment.Primary outcome measures
Change in Decision Self-Efficacy Scale Score
Change in Quality of Life-Alzheimer's Disease (QoL-AD) Scale Score
Participant retention
+2 moreTrial Design
1Treatment groups
Experimental Treatment
Group I: Prototype InterventionExperimental Treatment1 Intervention
The prototype intervention will be likely family-based and focused on issues of communication, problem-solving, health system literacy, and family systems, all considered in the context of the African-American (AA) adult daughter role and cultural identity.
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Who is running the clinical trial?
Emory UniversityLead Sponsor
1,642 Previous Clinical Trials
2,563,862 Total Patients Enrolled
20 Trials studying Dementia
2,796 Patients Enrolled for Dementia
National Institute on Aging (NIA)NIH
1,682 Previous Clinical Trials
28,026,146 Total Patients Enrolled
271 Trials studying Dementia
23,628,313 Patients Enrolled for Dementia
Kalisha Bonds Johnson, PhD RN PMHNPPrincipal InvestigatorEmory University
Media Library
Eligibility Criteria:
This trial includes the following eligibility criteria:- I am an African American caregiver, over 18, helping a loved one with daily tasks and care decisions, and I have internet and email access.I am an African American, 50 or older, with mild to moderate dementia and can communicate in English.I am a caregiver with experience in managing healthcare for a parent with dementia.
Research Study Groups:
This trial has the following groups:- Group 1: Prototype Intervention
Awards:
This trial has 1 awards, including:- No Placebo-Only Group - All patients enrolled in this study will receive some form of active treatment.
Timeline:
This trial has the following timeline:- Screening: It may take up to 3 Weeks to process to see if you qualify in this trial.
- Treatment: The duration you will receive the treatment varies.
- Follow Ups: You may be asked to continue sharing information regarding the trial for 6 Months after you stop receiving the treatment.
Frequently Asked Questions
These questions and answers are submitted by anonymous patients, and have not been verified by our internal team.
Is recruitment for this experiment still active?
"According to the details found on clinicaltrials.gov, this medical research project is still recruiting participants. This trial was initially posted in mid-July 2022 and most recently updated a few days later."
Answered by AI
What is the maximum number of participants this trial can accommodate?
"Affirmative. According to clinicaltrials.gov, this experiment was initiated on July 15th 2022 and is currently still accepting participants. 4 medical centres must recruit a total of 40 patients for the trial to proceed."
Answered by AI
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