Decision Support for Dementia Caregivers
Trial Summary
Will I have to stop taking my current medications?
The trial information does not specify whether you need to stop taking your current medications. It seems focused on decision-making support rather than medication changes.
What data supports the effectiveness of the treatment Prototype Intervention, Culturally Tailored Decision-Making Program for dementia caregivers?
Research shows that shared decision-making, which involves patients, family members, and healthcare providers, is important for people with dementia and is preferred by caregivers. This approach helps ensure that the values and choices of those with dementia are respected, even as their cognitive abilities decline.12345
Is the Decision Support for Dementia Caregivers treatment safe for humans?
The research does not provide specific safety data for the Decision Support for Dementia Caregivers treatment, but a related study on a home safety toolkit for dementia caregivers showed improved caregiver outcomes and reduced risky behaviors and accidents for care receivers, suggesting a focus on safety.46789
How does the 'Decision Support for Dementia Caregivers' treatment differ from other treatments for dementia?
This treatment is unique because it focuses on supporting caregivers in making decisions for dementia patients, emphasizing shared decision-making and cultural considerations, rather than directly treating the patient's symptoms. It involves collaborative efforts among family members and healthcare providers to optimize care, which is different from traditional medical treatments that primarily target the patient's cognitive decline.2341011
What is the purpose of this trial?
The purpose of this study is to design and test a decision-making program that is tailored to support adult daughters making healthcare decisions for their parents who are living with memory loss to improve the quality of life of African American families.There are two phases of this research study. The first phase will collect information by surveys and/or interviews. The surveys and interviews will ask questions about demographics (e.g., age, race/ethnicity), culture, health, family dynamics, caregiving, and healthcare experiences. The surveys will be completed by all eligible adult daughters and parents with memory loss in pairs. The interviews will be completed by a smaller number of pairs and by all former adult daughter caregivers.The general scope of topics is caregiving experiences, cultural identity, healthcare decisions for persons living with Alzheimer's disease, and related dementias, health, and well-being. The research team will identify and examine key factors that will lead to designing and testing the feasibility of a culturally tailored prototype intervention for African American dementia dyads/families of persons living with mild to moderate Alzheimer's disease and related dementias.
Research Team
Kalisha Bonds Johnson, PhD RN PMHNP
Principal Investigator
Emory University
Eligibility Criteria
This trial is for African American adult daughters aiding their parents with mild to moderate Alzheimer's or dementia. Participants must be able to use email and the internet, speak English, and help with healthcare decisions. Excluded are those with major neurological diseases other than Alzheimer's or severe psychiatric disorders.Inclusion Criteria
Exclusion Criteria
Timeline
Screening
Participants are screened for eligibility to participate in the trial
Phase 1: Data Collection
Surveys and semi-structured interviews are conducted with adult daughters and parents with memory loss, as well as past caregivers.
Phase 2a: Prototype Development
Key informants participate in focus group sessions to develop the prototype intervention using design thinking strategies.
Phase 2b: Intervention Testing
Pretest/posttest design with two follow-ups to test the prototype intervention with new dyad participants.
Follow-up
Participants are monitored for retention and usability of the intervention.
Treatment Details
Interventions
- Prototype Intervention
Find a Clinic Near You
Who Is Running the Clinical Trial?
Emory University
Lead Sponsor
National Institute on Aging (NIA)
Collaborator