Family-Centred Telehealth Training for Telerehabilitation
(TIPS Trial)
Trial Summary
Will I have to stop taking my current medications?
The trial information does not specify whether participants need to stop taking their current medications.
What data supports the effectiveness of the treatment Family-Centred Telehealth Training for Telerehabilitation?
Research shows that telerehabilitation can help maintain the connection between therapists and families, provide coping strategies, and prevent functional decline in children. Additionally, family-centered approaches in rehabilitation empower families to actively participate in care, which can improve outcomes.12345
Is Family-Centred Telehealth Training for Telerehabilitation safe for humans?
How is the Family-Centred Telehealth Training (TIPS for FCT) treatment different from other treatments for pediatric rehabilitation?
The Family-Centred Telehealth Training (TIPS for FCT) is unique because it focuses on training pediatric therapists to adopt family-centered telerehabilitation, which is a relatively new approach that became more prominent due to the COVID-19 pandemic. This treatment emphasizes providing evidence-based training and support to therapists, which is not commonly addressed in other rehabilitation treatments.1491011
What is the purpose of this trial?
Timely access to family-centred services for children with disability and their families is important to support their development and well-being. Currently, many children face long wait times and barriers to services. Lack of access can lead to negative impacts for children and stress for their families. With the COVID-19 pandemic, these issues have been made more challenging with the loss of rehabilitation support for children, increasing stress on families. During this time, therapists moved to telehealth service delivery to support children and families.We know that telehealth can improve access to services, children's outcomes, and family satisfaction, and that telehealth a key element of Family Centred Services (FCS) in pediatric rehabilitation. FCC include practices that promote flexibility, respect and dignity for families' views, knowledge and strengths, effective information sharing, partnership and collaboration in decision making, and coordinated and comprehensive care. FCC focuses on developing collaborative family-provider relationships, where parents are active participants in collaborative goal-setting, therapy planning, implementation, and evaluation, and where activities are integrated within daily routines and contexts (e.g., home and community). Compared to traditional service delivery methods, telehealth offers opportunities to enhance FCC practices. FCC provides alternate, convenient, and flexible ways to partner with families, respecting their characteristics and barriers, allows knowledge and information sharing about the child within their contexts, supports family decision making and parents' well-being, and has been recognized as an important addition to comprehensive care coordination and service delivery.Telehealth is an important and effective alternative for families living in both urban and remote or underserved areas and can be more convenient than in-person visits (e.g., less travel time, schedule flexibility). However, the use of telehealth prior to the pandemic was low in pediatric rehabilitation. In addition, many therapists report delivering telehealth without prior experience, and lack confidence, knowledge, and training in effective intervention strategies. Although therapists' knowledge, skills and attitudes toward telehealth can improve with time and experience, training and support are required for behavioural changes to occur.Following the pandemic, there has been continued support for the use of FCT and for its ongoing use to support families of children with disability. Pediatric rehabilitation therapists, service managers, professional associations, policy makers, and families are all making the case for not "returning to normal", and are asking for help to keep telehealth as part of FCS care.The goal of the current study is to evaluate the use and effectiveness of a Training Intervention and Program of Support (TIPS) to increase the uptake of FCT in pediatric rehabilitation centres across Canada.The main research question is: Can TIPS be adapted to increase the use of FCT interventions by therapists working in different contexts?The primary objectives are to:1. Evaluate the use of FCT regarding: 1. Therapists' desire to use vs actual use of FCT practices 2. Use of FCT practices as they were intended to be used Secondary objectives are to:2. Describe the variations required to adapt the TIPS to meet each site's needs3. Identify factors that influence FCT use and adherence4. Evaluate the effectiveness with regards to: 1. Service wait-times 2. Family-centredness of services 3. Changes in service delivery5. Evaluate the costs (and possible cost savings) related to increased use of FCTThe primary hypotheses are that therapists' desire to adopt FCT and deliver FCT practices as intended will (i) improve slightly in the short term (i.e., one-month post-TIPS), yet (ii) will improve significantly post-TIPS, (iii) while actual use will vary over time, across sites and therapists, and will depend on therapist-, client-, organizational- and system-factors. For the secondary hypotheses, the investigators expect that, for sites with the largest changes in desire to use and use of FCT practices as intended, (iv) wait times will significantly decrease and (v) families' perceptions of service quality will significantly improve post-TIPS.
Research Team
Chantal Camden, PhD
Principal Investigator
École de réadaptation, CRCHUS, Université de Sherbrooke
Eligibility Criteria
This trial is for pediatric rehabilitation therapists, managers, and parents involved in telehealth services. It includes therapist champions recognized by peers, managers overseeing rehab services, parents who've used these services recently, and parent/patient-partners from advisory committees or engagement programs. Participants must be able to speak French or English.Inclusion Criteria
Timeline
Screening
Participants are screened for eligibility to participate in the trial
Training Intervention
A 10-hour intensive training program offered to participating therapists, including 4 hours of self-paced learning modules and a 6-hour mandatory interactive webinar
Program of Support
An 11-month program of support composed of monthly mentoring meetings and a national virtual community of practice
Follow-up
Participants are monitored for the effectiveness of the TIPS implementation and its impact on service delivery
Treatment Details
Interventions
- Training Intervention and Program of Support (TIPS)
Training Intervention and Program of Support (TIPS) is already approved in Canada for the following indications:
- Pediatric rehabilitation
- Family-centred services
Find a Clinic Near You
Who Is Running the Clinical Trial?
Université de Sherbrooke
Lead Sponsor
Canadian Institutes of Health Research (CIHR)
Collaborator