2360 Participants Needed

Family-Centred Telehealth Training for Telerehabilitation

(TIPS Trial)

Recruiting at 2 trial locations
CC
JB
Overseen ByJade Berbari
Age: 18+
Sex: Any
Trial Phase: Academic
Sponsor: Université de Sherbrooke
No Placebo GroupAll trial participants will receive the active study treatment (no placebo)
Approved in 1 JurisdictionThis treatment is already approved in other countries

Trial Summary

Will I have to stop taking my current medications?

The trial information does not specify whether participants need to stop taking their current medications.

What data supports the effectiveness of the treatment Family-Centred Telehealth Training for Telerehabilitation?

Research shows that telerehabilitation can help maintain the connection between therapists and families, provide coping strategies, and prevent functional decline in children. Additionally, family-centered approaches in rehabilitation empower families to actively participate in care, which can improve outcomes.12345

Is Family-Centred Telehealth Training for Telerehabilitation safe for humans?

The available research does not specifically address the safety of Family-Centred Telehealth Training for Telerehabilitation, but telerehabilitation in general is considered acceptable and can be as effective as face-to-face interventions for various clinical outcomes.16789

How is the Family-Centred Telehealth Training (TIPS for FCT) treatment different from other treatments for pediatric rehabilitation?

The Family-Centred Telehealth Training (TIPS for FCT) is unique because it focuses on training pediatric therapists to adopt family-centered telerehabilitation, which is a relatively new approach that became more prominent due to the COVID-19 pandemic. This treatment emphasizes providing evidence-based training and support to therapists, which is not commonly addressed in other rehabilitation treatments.1491011

What is the purpose of this trial?

Timely access to family-centred services for children with disability and their families is important to support their development and well-being. Currently, many children face long wait times and barriers to services. Lack of access can lead to negative impacts for children and stress for their families. With the COVID-19 pandemic, these issues have been made more challenging with the loss of rehabilitation support for children, increasing stress on families. During this time, therapists moved to telehealth service delivery to support children and families.We know that telehealth can improve access to services, children's outcomes, and family satisfaction, and that telehealth a key element of Family Centred Services (FCS) in pediatric rehabilitation. FCC include practices that promote flexibility, respect and dignity for families' views, knowledge and strengths, effective information sharing, partnership and collaboration in decision making, and coordinated and comprehensive care. FCC focuses on developing collaborative family-provider relationships, where parents are active participants in collaborative goal-setting, therapy planning, implementation, and evaluation, and where activities are integrated within daily routines and contexts (e.g., home and community). Compared to traditional service delivery methods, telehealth offers opportunities to enhance FCC practices. FCC provides alternate, convenient, and flexible ways to partner with families, respecting their characteristics and barriers, allows knowledge and information sharing about the child within their contexts, supports family decision making and parents' well-being, and has been recognized as an important addition to comprehensive care coordination and service delivery.Telehealth is an important and effective alternative for families living in both urban and remote or underserved areas and can be more convenient than in-person visits (e.g., less travel time, schedule flexibility). However, the use of telehealth prior to the pandemic was low in pediatric rehabilitation. In addition, many therapists report delivering telehealth without prior experience, and lack confidence, knowledge, and training in effective intervention strategies. Although therapists' knowledge, skills and attitudes toward telehealth can improve with time and experience, training and support are required for behavioural changes to occur.Following the pandemic, there has been continued support for the use of FCT and for its ongoing use to support families of children with disability. Pediatric rehabilitation therapists, service managers, professional associations, policy makers, and families are all making the case for not "returning to normal", and are asking for help to keep telehealth as part of FCS care.The goal of the current study is to evaluate the use and effectiveness of a Training Intervention and Program of Support (TIPS) to increase the uptake of FCT in pediatric rehabilitation centres across Canada.The main research question is: Can TIPS be adapted to increase the use of FCT interventions by therapists working in different contexts?The primary objectives are to:1. Evaluate the use of FCT regarding: 1. Therapists' desire to use vs actual use of FCT practices 2. Use of FCT practices as they were intended to be used Secondary objectives are to:2. Describe the variations required to adapt the TIPS to meet each site's needs3. Identify factors that influence FCT use and adherence4. Evaluate the effectiveness with regards to: 1. Service wait-times 2. Family-centredness of services 3. Changes in service delivery5. Evaluate the costs (and possible cost savings) related to increased use of FCTThe primary hypotheses are that therapists' desire to adopt FCT and deliver FCT practices as intended will (i) improve slightly in the short term (i.e., one-month post-TIPS), yet (ii) will improve significantly post-TIPS, (iii) while actual use will vary over time, across sites and therapists, and will depend on therapist-, client-, organizational- and system-factors. For the secondary hypotheses, the investigators expect that, for sites with the largest changes in desire to use and use of FCT practices as intended, (iv) wait times will significantly decrease and (v) families' perceptions of service quality will significantly improve post-TIPS.

Research Team

CC

Chantal Camden, PhD

Principal Investigator

École de réadaptation, CRCHUS, Université de Sherbrooke

Eligibility Criteria

This trial is for pediatric rehabilitation therapists, managers, and parents involved in telehealth services. It includes therapist champions recognized by peers, managers overseeing rehab services, parents who've used these services recently, and parent/patient-partners from advisory committees or engagement programs. Participants must be able to speak French or English.

Inclusion Criteria

Managers: Person responsible for rehabilitation services at the site, or their delegate
I can speak French or English.
Parent/patient-partners: Recruited from family, parent or patient advisory committees at the participating sites or, in the absence of such initiatives, from regional, provincial, or national patient engagement programs
See 3 more

Timeline

Screening

Participants are screened for eligibility to participate in the trial

2-4 weeks

Training Intervention

A 10-hour intensive training program offered to participating therapists, including 4 hours of self-paced learning modules and a 6-hour mandatory interactive webinar

4 weeks
1 visit (virtual)

Program of Support

An 11-month program of support composed of monthly mentoring meetings and a national virtual community of practice

11 months
Monthly virtual meetings

Follow-up

Participants are monitored for the effectiveness of the TIPS implementation and its impact on service delivery

6 months

Treatment Details

Interventions

  • Training Intervention and Program of Support (TIPS)
Trial Overview The study tests a Training Intervention and Program of Support (TIPS) aimed at increasing the use of family-centred telehealth (FCT) in pediatric rehab. It evaluates therapists' desire versus actual use of FCT practices, adaptations needed for different sites, factors influencing FCT adherence, service wait-times impact, family-centeredness improvement and cost-effectiveness.
Participant Groups
1Treatment groups
Experimental Treatment
Group I: TelehealthExperimental Treatment1 Intervention
The proposed pre-post study will evaluate the implementation and effectiveness of a Training Intervention and Program of Support (TIPS) to enhance the adoption of family-centred telehealth in pediatric rehabilitation centres across Canada. TIPS is a multifaceted intervention, comprised of the following: 1) a 10-hour intensive training program offered to participating therapists at each site over a one-month period, including 4 hours of self-paced learning modules and a 6-hour mandatory interactive webinar; and 2) an 11-month program of support which is composed of monthly mentoring meetings at each site led by the local therapist champion, and a national virtual community of practice facilitated by 3 national knowledge brokers - an occupational therapist, a physiotherapist and a speech-language pathologist - experienced in family-centred telehealth in pediatric rehabilitation, offered simultaneously to all participating therapists across Canada.

Training Intervention and Program of Support (TIPS) is already approved in Canada for the following indications:

🇨🇦
Approved in Canada as Training Intervention and Program of Support (TIPS) for:
  • Pediatric rehabilitation
  • Family-centred services

Find a Clinic Near You

Who Is Running the Clinical Trial?

Université de Sherbrooke

Lead Sponsor

Trials
317
Recruited
79,300+

Canadian Institutes of Health Research (CIHR)

Collaborator

Trials
1,417
Recruited
26,550,000+

Findings from Research

This study evaluates a training intervention and support program (TIPS) aimed at enhancing the adoption of family-centered telerehabilitation (FCT) among pediatric therapists across 20 sites in Canada, with data collection expected to start in September 2022 and conclude by September 2024.
The research will assess the effectiveness of TIPS on therapists' adoption rates, service wait times, and families' perceptions of service quality, providing valuable insights into the implementation of telehealth in pediatric rehabilitation.
Training Intervention and Program of Support for Fostering the Adoption of Family-Centered Telehealth in Pediatric Rehabilitation: Protocol for a Multimethod, Prospective, Hybrid Type 3 Implementation-Effectiveness Study.Hurtubise, K., Gaboury, I., Berbari, J., et al.[2022]
Telerehabilitation using videoconferencing significantly helped families caring for individuals with prolonged reduced consciousness, as more patients in this group remained at home and returned for rehabilitation compared to a control group.
Families using videophone support reported that their needs were better met, indicating that this approach can enhance caregiver support and potentially improve the overall care experience.
Telerehabilitation support for families at home caring for individuals in prolonged states of reduced consciousness.Hauber, RP., Jones, ML.[2019]
The Nossa Casa Institute in Brazil is pioneering efforts to enhance awareness and support for families of children with cerebral palsy (CP) through knowledge translation initiatives, including an interactive online workshop focused on family-centered service (FCS) principles.
The workshop successfully engaged families, healthcare professionals, and researchers in discussions about FCS, empowering families to actively participate in their children's rehabilitation and advocate for better care, with plans for future national conferences to further these connections.
Information and Empowerment of Families of Children With Cerebral Palsy in Brazil: The Knowledge Translation Role of Nossa Casa Institute.Airoldi, MJ., Vieira, BS., Teplicky, R., et al.[2022]

References

Training Intervention and Program of Support for Fostering the Adoption of Family-Centered Telehealth in Pediatric Rehabilitation: Protocol for a Multimethod, Prospective, Hybrid Type 3 Implementation-Effectiveness Study. [2022]
Telerehabilitation support for families at home caring for individuals in prolonged states of reduced consciousness. [2019]
Information and Empowerment of Families of Children With Cerebral Palsy in Brazil: The Knowledge Translation Role of Nossa Casa Institute. [2022]
Transition to Multidisciplinary Pediatric Telerehabilitation during the COVID-19 Pandemic: Strategy Development and Implementation. [2021]
The virtual family conference in stroke rehabilitation: Education, preparation, and transition planning. [2023]
Acceptability of a Multimodal Telerehabilitation Intervention for Children Ages 3-8 Years with Motor Difficulties: Results of a Qualitative Study. [2023]
Acceptability of Pediatric Telerehabilitation Interventions Provided by Physical Therapists and Occupational Therapists-A Scoping Review. [2022]
Diversity of practices in telerehabilitation for children with disabilities and effective intervention characteristics: results from a systematic review. [2021]
American Telemedicine Association's Principles for Delivering Telerehabilitation Services. [2022]
10.United Statespubmed.ncbi.nlm.nih.gov
Telehealth Clinical Practice Guide for Occupational Therapy, Physical Therapy, and Speech and Language Pathology: A Saudi and Middle Eastern Guide. [2022]
Telehealth application on the rehabilitation of children and adolescents. [2022]
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