Digital Self-Management for Childhood Cancer Survivors
Trial Summary
Will I have to stop taking my current medications?
The trial information does not specify whether you need to stop taking your current medications. It focuses on improving self-management skills for young adult survivors of childhood cancer.
What data supports the effectiveness of the treatment Managing Your Health (MYH) for childhood cancer survivors?
Research shows that self-management education programs can improve self-efficacy (confidence in managing one's health), health knowledge, and health behaviors in people with chronic diseases. Digital tools, like mobile health apps, are seen as promising ways to deliver these programs to childhood cancer survivors, potentially enhancing their care.12345
Is the digital self-management program safe for childhood cancer survivors?
How is the treatment Managing Your Health (MYH) different from other treatments for childhood cancer survivors?
Managing Your Health (MYH) is unique because it uses digital self-management tools, like mobile health (mHealth) apps, to help childhood cancer survivors manage their health. This approach is novel as it leverages technology to deliver self-management education, which is not commonly used in existing treatments for this population.23568
What is the purpose of this trial?
This study tests how helpful a digital self-management and peer mentoring program is to young adult survivors of childhood cancer to improve their ability to manage their survivorship care as they transition from pediatric to adult-oriented follow-up care. Survivors require lifelong "risk-based" follow-up care based on the treatment they received to identify and treat late health effects. The transition from pediatric to adult follow-up care is a critical period when many survivors are lost to follow-up. Barriers to successful transition and engagement in care include poor knowledge of cancer history, low healthcare self-efficacy, poor self-management skills, low health literacy, and access issues such as financial hardship, insurance, and distance from cancer center. The "Managing Your Health" digital self-management and peer mentoring program aims to address these gaps and improve survivorship care self-management. Improvements in healthcare self-management are necessary to keep young adult survivors engaged in recommended health care, improve their quality of life, and promote optimal health.
Research Team
Kristine Levonyan-Radloff, MS
Principal Investigator
Rutgers Cancer Institute
Eligibility Criteria
This trial is for young adult survivors of childhood cancer who are transitioning from pediatric to adult follow-up care. They should be in need of support to manage their survivorship care and overcome barriers such as poor knowledge, low self-efficacy, and access issues.Inclusion Criteria
Exclusion Criteria
Timeline
Screening
Participants are screened for eligibility to participate in the trial
Intervention
Participants engage in the Managing Your Health app and Peer Mentoring Intervention or receive Usual Care + Educational Control
Follow-up
Participants are monitored for self-management behaviors, health-related quality of life, and adherence to guideline-concordant survivorship care
Treatment Details
Interventions
- Managing Your Health (MYH)
Find a Clinic Near You
Who Is Running the Clinical Trial?
Rutgers, The State University of New Jersey
Lead Sponsor
National Cancer Institute (NCI)
Collaborator
University of Southern California
Collaborator
Children's Hospital Los Angeles
Collaborator