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Behavioural Intervention

Quality-of-Life Assessment for Caregiver

N/A
Waitlist Available
Led By Terrah Akard, PhD
Research Sponsored by Vanderbilt-Ingram Cancer Center
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
Be younger than 18 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up up to 3 months
Awards & highlights

Study Summary

This trial is testing a web-based intervention to help improve quality of life for caregivers and younger patients with cancer. The intervention involves legacy-making activities, which may help reduce the suffering of children with cancer and their caregivers.

Eligible Conditions
  • Caregiver
  • Malignant Neoplasm

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~up to 3 months
This trial's timeline: 3 weeks for screening, Varies for treatment, and up to 3 months for reporting.

Treatment Details

Study Objectives

Outcome measures can provide a clearer picture of what you can expect from a treatment.
Primary outcome measures
Child adjustment
Child coping strategies
Parent adjustment
+1 more
Secondary outcome measures
Parent satisfaction

Trial Design

2Treatment groups
Experimental Treatment
Active Control
Group I: Group I (web-based legacy intervention)Experimental Treatment3 Interventions
Patients participate in a web-based legacy intervention by answering questions about themselves and uploading videos, photographs, and music to create a digital story within 2 weeks.
Group II: Group II (standard of care)Active Control3 Interventions
Patients receive standard of care. Patients have the option to participate in the web-based legacy intervention after 2 months.

Find a Location

Who is running the clinical trial?

National Institute of Nursing Research (NINR)NIH
580 Previous Clinical Trials
10,376,261 Total Patients Enrolled
Vanderbilt-Ingram Cancer CenterLead Sponsor
213 Previous Clinical Trials
60,633 Total Patients Enrolled
Palliative Care Research Cooperative GroupNETWORK
8 Previous Clinical Trials
1,862 Total Patients Enrolled

Frequently Asked Questions

These questions and answers are submitted by anonymous patients, and have not been verified by our internal team.
Recent research and studies
Journal of Hospice & Palliative NursingJournal
Transforming a Face-to-face Legacy Intervention to a Web-based Legacy Intervention for Children with Advanced Cancer
Akard, Terrah Foster, Sarah Wray, Debra L. Friedman, Mary S. Dietrich, Verna Hendricks-Ferguson, Barbara Given, Cynthia A. Gerhardt, Pamela S. Hinds, and Mary Jo Gilmer. 2019. “Transforming a Face-to-face Legacy Intervention to a Web-based Legacy Intervention for Children with Advanced Cancer”. Journal of Hospice & Palliative Nursing. Ovid Technologies (Wolters Kluwer Health). doi:10.1097/njh.0000000000000614.
Oncology Nursing ForumJournal
Effects of a Web-based Pediatric Oncology Legacy Intervention on Parental Coping
Foster Akard, Terrah, Mary Dietrich, Debra Friedman, Sarah Wray, Cynthia Gerhardt, Barbara Given, Verna Hendricks-Ferguson, Pamela Hinds, Eunji Cho, and Mary Jo Gilmer. 2021. “Effects of a Web-based Pediatric Oncology Legacy Intervention on Parental Coping”. Oncology Nursing Forum. Oncology Nursing Society (ONS). doi:10.1188/21.onf.309-316.
Journal of Palliative MedicineJournal
Randomized Clinical Trial of a Legacy Intervention for Quality of Life in Children with Advanced Cancer
Akard, Terrah Foster, Mary S. Dietrich, Debra L. Friedman, Sarah Wray, Cynthia A. Gerhardt, Verna Hendricks-Ferguson, Pamela S. Hinds, Bethany Rhoten, and Mary Jo Gilmer. 2021. “Randomized Clinical Trial of a Legacy Intervention for Quality of Life in Children with Advanced Cancer”. Journal of Palliative Medicine. Mary Ann Liebert Inc. doi:10.1089/jpm.2020.0139.
Journal of Pediatric Oncology NursingJournal
Associations of Age, Gender, and Family Income with Quality of Life in Children with Advanced Cancer
Robson, Piera C., Mary S. Dietrich, and Terrah Foster Akard. 2021. “Associations of Age, Gender, and Family Income with Quality of Life in Children with Advanced Cancer”. Journal of Pediatric Oncology Nursing. SAGE Publications. doi:10.1177/1043454221992321.
~31 spots leftby Apr 2025
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