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"My Health Priorities" Program for Multiple Chronic Conditions
N/A
Recruiting
Led By Deborah Ejem, PhD
Research Sponsored by University of Alabama at Birmingham
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial Must have
Be older than 65 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up 18 weeks post-baseline
Awards & highlights
Study Summary
This trial is testing a Self-directed "My Health Priorities" Identification Program to help African American patients with multiple chronic conditions (MCCs) and their caregivers identify their own values and priorities for end-of-life care.
Who is the study for?
This trial is for English-speaking African American patients aged 65 or older with at least two chronic conditions like cancer, heart, kidney, or liver disease. They must be able to make decisions and have a family caregiver willing to join the study. Both need reliable internet and phone access.Check my eligibility
What is being tested?
The 'My Health Priorities' program is being tested among African Americans with multiple chronic conditions in primary care settings. The goal is to see if it's culturally acceptable and feasible for helping them communicate their end-of-life care values and priorities.See study design
What are the potential side effects?
Since this intervention involves communication and decision-making support rather than medical treatment, traditional physical side effects are not expected. However, participants may experience emotional or psychological responses when discussing sensitive topics like end-of-life care.
Timeline
Screening ~ 3 weeks3 visits
Treatment ~ Varies
Follow Up ~ 18 weeks post-baseline
Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~18 weeks post-baseline
Treatment Details
Study Objectives
Outcome measures can provide a clearer picture of what you can expect from a treatment.Primary outcome measures
A single arm formative evaluation (qualitative interviews) exploring acceptability of program
A single arm formative evaluation (qualitative interviews) exploring acceptability of the program
Bakas Caregiver Outcomes (BCOS)
+11 moreTrial Design
1Treatment groups
Experimental Treatment
Group I: "My Health Priorities" Identification ProgramExperimental Treatment1 Intervention
The intervention, the "My Health Priorities" Identification Program consists of four self-directed, web-based modules intended to guide patients with MCCs in identifying their own health priorities. These priorities can then be used to guide discussions with family caregivers and clinicians regarding specific goals and preferences that they wish to guide future treatment decisions. Most models of palliative care have been developed based on white middle-class populations and may not apply to African Americans (AA) who have a very different cultural value set.
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Who is running the clinical trial?
University of Alabama at BirminghamLead Sponsor
1,588 Previous Clinical Trials
2,280,272 Total Patients Enrolled
2 Trials studying Multiple Chronic Conditions
222 Patients Enrolled for Multiple Chronic Conditions
Deborah Ejem, PhDPrincipal InvestigatorUniversity of Alabama at Birmingham
Media Library
Eligibility Criteria:
This trial includes the following eligibility criteria:- I am an African American over 65 with at least two chronic conditions and can make decisions. I have internet and a caregiver willing to join the study.
Research Study Groups:
This trial has the following groups:- Group 1: "My Health Priorities" Identification Program
Awards:
This trial has 1 awards, including:- No Placebo-Only Group - All patients enrolled in this study will receive some form of active treatment.
Timeline:
This trial has the following timeline:- Screening: It may take up to 3 Weeks to process to see if you qualify in this trial.
- Treatment: The duration you will receive the treatment varies.
- Follow Ups: You may be asked to continue sharing information regarding the trial for 6 Months after you stop receiving the treatment.
Frequently Asked Questions
These questions and answers are submitted by anonymous patients, and have not been verified by our internal team.
Are additional participants being accepted for this experiment?
"Per records on clinicaltrials.gov, this medical research is currently seeking participants. It was initially made available to the public on February 1st 2022 and had its last update nearly a month later on 25th of that same month."
Answered by AI
How many subjects are enrolled in the current experiment?
"Affirmative. According to information on clinicaltrials.gov, this study is presently recruiting patients that meet the criteria. Initially posted on February 1st 2022 and last updated on February 25th 2022, 40 participants must be recruited from one site for the trial to proceed."
Answered by AI
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