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HealthPAL for Amyotrophic Lateral Sclerosis

N/A
Waitlist Available
Led By Paul J Barr, PhD
Research Sponsored by Dartmouth-Hitchcock Medical Center
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
Be older than 18 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up study completion, an average of 1 year
Awards & highlights

Study Summary

This study is evaluating whether sharing video recordings of a patient's visit with their doctor may help improve communication between patients and their doctors.

Eligible Conditions
  • Amyotrophic Lateral Sclerosis

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~study completion, an average of 1 year
This trial's timeline: 3 weeks for screening, Varies for treatment, and study completion, an average of 1 year for reporting.

Treatment Details

Study Objectives

Outcome measures can provide a clearer picture of what you can expect from a treatment.
Primary outcome measures
Intervention Fidelity (Feasibility)
Patient Enrollment (Feasibility)
Patient use of the Intervention (Acceptability)
Secondary outcome measures
Acceptability of the Intervention, as measured by the Acceptability of Intervention Metric (AIM)
Change from baseline in Patient Satisfaction, as measured by the Patient Satisfaction Questionnaire-18 (PSQ-18)
Change from baseline in adherence to medications, as measured by the Adherence to Refills and Medications Scale - 7 (ARMS-7)
+11 more

Trial Design

2Treatment groups
Experimental Treatment
Active Control
Group I: VIDEOExperimental Treatment1 Intervention
Participants receive access to video recordings of their clinic visits
Group II: Usual CareActive Control1 Intervention
Participants receive usual care (UC), which is their normal clinic visit and written after-visit summary

Find a Location

Who is running the clinical trial?

Dartmouth-Hitchcock Medical CenterLead Sponsor
524 Previous Clinical Trials
2,543,262 Total Patients Enrolled
3 Trials studying Amyotrophic Lateral Sclerosis
2,055 Patients Enrolled for Amyotrophic Lateral Sclerosis
The Diamond Endowment ProjectUNKNOWN
Paul J Barr, PhDPrincipal InvestigatorDartmouth College
4 Previous Clinical Trials
1,672 Total Patients Enrolled

Frequently Asked Questions

These questions and answers are submitted by anonymous patients, and have not been verified by our internal team.
Recent research and studies
clinicaltrials.govStudy
Determining Feasibility and Acceptability of Sharing Video Recordings With Patients With ALS and Caregivers
Paul J. Barr 2021. "Determining Feasibility and Acceptability of Sharing Video Recordings With Patients With ALS and Caregivers". ClinicalTrials.gov. https://clinicaltrials.gov/ct2/show/NCT04719403.
~20 spots leftby Apr 2025
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