Web-based Education for Congenital Heart Disease Transition
Trial Summary
Do I need to stop my current medications for this trial?
The trial information does not specify whether you need to stop taking your current medications.
What data supports the effectiveness of the treatment Web-based Educational Intervention for congenital heart disease transition?
Research shows that online, evidence-based information portals can effectively provide patient education for congenital heart disease, as seen in a study on a similar portal for congenital aortic and pulmonary valve disease. Additionally, transition clinics have been shown to improve patient education and self-care skills, which are important for successful transition to adult care.12345
How does the Web-based Education for Congenital Heart Disease Transition treatment differ from other treatments for this condition?
This treatment is unique because it uses an online platform to provide education specifically for transitioning adolescents and young adults with congenital heart disease, helping them understand their condition and manage their care as they move from pediatric to adult healthcare services. Unlike traditional treatments, this approach focuses on improving health literacy and autonomy through digital education tools.12678
What is the purpose of this trial?
The study looks to learn more about the helpfulness of web-based transition education and its effect on transition readiness and health service utilization in the adolescent and young adult congenital heart disease population.
Research Team
Karen Uzark, PhD, CPNP
Principal Investigator
University of Michigan
Eligibility Criteria
This trial is for young people aged 13-25 with congenital heart disease who are already seeing a cardiologist regularly. It's not suitable for new patients, those currently dealing with an urgent health issue, non-English speakers, or individuals with severe brain function issues that make it hard to fill out a survey.Inclusion Criteria
Exclusion Criteria
Timeline
Screening
Participants are screened for eligibility to participate in the trial
Web-based Educational Intervention
Participants receive access to a web-based educational resource in addition to the standard of care
Follow-up
Participants are monitored for changes in transition readiness and health service utilization
Treatment Details
Interventions
- Web-based Educational Intervention
Find a Clinic Near You
Who Is Running the Clinical Trial?
University of Michigan
Lead Sponsor
University of Nebraska
Collaborator