Educational Video for Childhood Cancer
What You Need to Know Before You Apply
What is the purpose of this trial?
This trial aims to develop and test an informational video about genetic testing for children and adolescents newly diagnosed with cancer or tumors. The video explains why both cancer tissue and normal tissue are tested, helping families understand the process and its benefits. By providing this information, the trial seeks to support families and improve their experience during a challenging time.
Will I have to stop taking my current medications?
The trial information does not specify whether you need to stop taking your current medications.
How does the Educational Video for Genetic Testing treatment differ from other treatments for childhood cancer?
What data supports the effectiveness of the treatment Educational Video for Genetic Testing?
Research shows that educational videos can significantly improve understanding and knowledge about complex medical topics, such as genetic testing and fertility preservation, among patients and their families. These videos help clarify concepts, reduce hesitancy, and enhance decision-making, making them an effective tool for patient education.12467
Who Is on the Research Team?
Suzanne MacFarland, MD
Principal Investigator
Children's Hospital of Philadelphia
Are You a Good Fit for This Trial?
This trial is for children and adolescents aged 12 or older with a new diagnosis of cancer, tumors, or genetic disorders. Participants must be able to understand and speak English fluently without cognitive impairments that limit comprehension. It's also open to parents/legal guardians of these patients at the Children's Hospital of Philadelphia.Inclusion Criteria
Exclusion Criteria
Timeline for a Trial Participant
Screening
Participants are screened for eligibility to participate in the trial
Intervention Year 1
Families receive the current standard-of-care approach to tumor-normal genetic testing with provider-based education
Intervention Year 2
Families receive the updated standard-of-care approach with provider-based education and an educational video
Follow-up
Participants are monitored for knowledge score and acceptability of the video intervention
What Are the Treatments Tested in This Trial?
Interventions
- Educational Video for Genetic Testing
Find a Clinic Near You
Who Is Running the Clinical Trial?
Children's Hospital of Philadelphia
Lead Sponsor
National Human Genome Research Institute (NHGRI)
Collaborator
National Institutes of Health (NIH)
Collaborator