Decision Aid for Dementia Caregivers
What You Need to Know Before You Apply
What is the purpose of this trial?
Family caregivers of people with dementia have to decide between tube feeding and hand feeding when persistent eating problems arise. This decision can be difficult for Chinese American dementia caregivers, due to the interplay of culture, potential absence of a patient's advance directive, poor understanding of dementia, and lack of knowledge on the risks and benefits of tube feeding. In this polit study, the principal investigator examines whether a culturally adapted decision aid intervention regarding feeding options named "Chinese version of Making Choices Feeding Options for Patients with Dementia Decision Aid" (CMCFODA) will improve Chinese American caregivers' decision-making about feeding options in patients with moderate or advanced dementia. The proposed study advances the field by providing critical evidence to inform the development and implementation of culturally adapted decision support interventions in end-of-life dementia care.
Are You a Good Fit for This Trial?
This trial is for Chinese American caregivers aged 21 or older who are helping with end-of-life decisions for older adults with moderate to advanced dementia, feeding difficulties, and issues like poor eating or weight loss.Inclusion Criteria
Timeline for a Trial Participant
Screening
Participants are screened for eligibility to participate in the trial
Intervention
Participants receive the CMCFODA intervention, including both electronic and paper versions, and individualized decision coaching
Follow-up
Participants are monitored for decision conflict, knowledge of feeding options, and expectations of tube feeding
Long-term Follow-up
Participants' retention and acceptability of the decision aid are assessed
What Are the Treatments Tested in This Trial?
Interventions
- Chinese version of Making Choices Feeding Options for Patients with Dementia Decision Aid
Trial Overview
The study tests a culturally adapted decision aid called 'Chinese version of Making Choices Feeding Options for Patients with Dementia Decision Aid' (CMCFODA) to see if it helps in making feeding-related decisions.
How Is the Trial Designed?
2
Treatment groups
Experimental Treatment
Active Control
1. Receive both the electronic and paper version of CMCFODA 2. Receive an individualized decision coaching within two weeks
1. Receive usual care (including information from healthcare providers) 2. Receive electrical version of decision aid after all of the data collection
Find a Clinic Near You
Who Is Running the Clinical Trial?
University of Texas at Austin
Lead Sponsor
National Institutes of Health (NIH)
Collaborator
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