Visual Aids for Genetic Risk
What You Need to Know Before You Apply
What is the purpose of this trial?
The goal of this study is to understand how people understand risk from genetic testing. The investigators want to understand what visual aid best helps people accurately assess risk. The investigators also want to understand how people relate risk to their health. The main questions the study aims to answer are:1. Which visual aid most accurately show genetic risk?2. How do people perceive risk related to genetic test results?3. What factors are associated with people discussing their results with family?Participants will:1. receive of of two visual aids showing risk2. state their estimation of risk3. answer questions about how they feel about risk and sharing information with family
Who Is on the Research Team?
Andrew A Dwyer, PhD
Principal Investigator
Boston College
Are You a Good Fit for This Trial?
This trial is for individuals who can read and understand English and have given consent to participate. It's designed to help researchers learn how different visual aids can affect a person's understanding of genetic risk from testing results.Inclusion Criteria
Exclusion Criteria
Timeline for a Trial Participant
Screening
Participants are screened for eligibility to participate in the trial
Intervention
Participants receive one of two visual aids showing genetic risk and state their estimation of risk
Assessment
Participants complete health literacy and numeracy assessments and answer questions about risk perception and communication intent
Follow-up
Participants are monitored for any additional feedback or changes in perception after the intervention
What Are the Treatments Tested in This Trial?
Interventions
- Narrative Visual Array
- Visual Array
Find a Clinic Near You
Who Is Running the Clinical Trial?
Stephanie B. Seminara, MD
Lead Sponsor
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Collaborator
Boston College
Collaborator