1200 Participants Needed

Visual Aids for Genetic Risk

Recruiting in Boston (>99 mi)
AA
Overseen ByAndrew A Dwyer, PhD
Age: 18+
Sex: Any
Trial Phase: Academic
Sponsor: Stephanie B. Seminara, MD
No Placebo GroupAll trial participants will receive the active study treatment (no placebo)

What You Need to Know Before You Apply

What is the purpose of this trial?

The goal of this study is to understand how people understand risk from genetic testing. The investigators want to understand what visual aid best helps people accurately assess risk. The investigators also want to understand how people relate risk to their health. The main questions the study aims to answer are:1. Which visual aid most accurately show genetic risk?2. How do people perceive risk related to genetic test results?3. What factors are associated with people discussing their results with family?Participants will:1. receive of of two visual aids showing risk2. state their estimation of risk3. answer questions about how they feel about risk and sharing information with family

Who Is on the Research Team?

AA

Andrew A Dwyer, PhD

Principal Investigator

Boston College

Are You a Good Fit for This Trial?

This trial is for individuals who can read and understand English and have given consent to participate. It's designed to help researchers learn how different visual aids can affect a person's understanding of genetic risk from testing results.

Inclusion Criteria

Ability to read and understand English
Opt-in consent

Exclusion Criteria

Incorrect responses to validation questions

Timeline for a Trial Participant

Screening

Participants are screened for eligibility to participate in the trial

1-2 weeks

Intervention

Participants receive one of two visual aids showing genetic risk and state their estimation of risk

1 day
1 visit (virtual)

Assessment

Participants complete health literacy and numeracy assessments and answer questions about risk perception and communication intent

1 day
1 visit (virtual)

Follow-up

Participants are monitored for any additional feedback or changes in perception after the intervention

2 weeks

What Are the Treatments Tested in This Trial?

Interventions

  • Narrative Visual Array
  • Visual Array
Trial Overview The study is comparing two types of visual aids: a Visual Array and a Narrative Visual Array, to see which one helps people more accurately assess their genetic risk. Participants will view one of these aids, estimate their risk, and discuss feelings about the risk and sharing info with family.
How Is the Trial Designed?
2Treatment groups
Experimental Treatment
Group I: Visual ArrayExperimental Treatment1 Intervention
Group II: Narrative Visual ArrayExperimental Treatment1 Intervention

Find a Clinic Near You

Who Is Running the Clinical Trial?

Stephanie B. Seminara, MD

Lead Sponsor

Trials
10
Recruited
840+

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

Collaborator

Trials
2,103
Recruited
2,760,000+

Boston College

Collaborator

Trials
40
Recruited
49,300+
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