Spanish Questionnaire Validation for Genomics and Precision Medicine Attitudes
What You Need to Know Before You Apply
What is the purpose of this trial?
The trial aims to validate a Spanish version of a survey measuring attitudes toward genomics and precision medicine. It focuses on ensuring the survey accurately reflects the views of individuals who identify as Hispanic, Latino, or Latina. This is crucial for developing healthcare approaches that address this community's specific needs and reduce healthcare disparities. Individuals who identify as Hispanic, Latino, or Latina and whose primary language is either Spanish or English may be suitable for this trial. As an unphased trial, participation offers a unique opportunity to contribute to research that could enhance healthcare for this community.
Do I need to stop my current medications to join the trial?
The trial information does not specify whether you need to stop taking your current medications.
What prior data suggests that this questionnaire is safe for participants?
This study does not test a new treatment. Instead, researchers are developing a questionnaire to understand people's thoughts about genetics and personalized medicine. Since no drugs or medical procedures are involved, there are no safety concerns or side effects. The study focuses on translating and ensuring the accuracy of a tool used to gather opinions. Therefore, participants face no risks related to medical treatments.
Why are researchers excited about this trial?
Researchers are excited about this trial because it aims to validate a Spanish-language questionnaire that explores attitudes toward genomics and precision medicine. Unlike typical surveys, which may not consider cultural and language differences, this approach ensures that the perspectives of Spanish-speaking Hispanic, Latino, and Latina individuals are accurately captured. By doing so, it could lead to more inclusive and effective communication strategies in the field of precision medicine, ultimately improving healthcare outcomes for these communities.
What evidence suggests that this questionnaire is effective for evaluating attitudes toward genomics and precision medicine?
This study does not focus on a medical treatment but aims to understand people's attitudes. It tests a Spanish version of a questionnaire about genomics and precision medicine. This tool helps researchers learn how Hispanic, Latino, or Latina people feel about these topics. Participants will be divided into two groups: those whose primary language is Spanish and those whose primary language is English. A reliable questionnaire is important for creating programs that reduce differences in healthcare access. While no treatment is involved, this study is crucial for ensuring fair access to genomic healthcare.
Who Is on the Research Team?
Andrew A Dwyer, PhD
Principal Investigator
Boston College
Are You a Good Fit for This Trial?
This trial is for individuals identifying as Hispanic, Latino/a, or Latinx who have been diagnosed with Acute Lymphoblastic Leukemia. The study aims to include participants to validate a Spanish version of an attitudes survey on genomics and precision medicine.Inclusion Criteria
Exclusion Criteria
Timeline for a Trial Participant
Screening
Participants are screened for eligibility to participate in the trial
Assessment
Participants complete the AGPM and other validated instruments to assess health literacy and numeracy
Follow-up
Participants are monitored for any additional data collection or feedback after the assessment
What Are the Treatments Tested in This Trial?
Interventions
- Attitudes Toward Genomics and Precision Medicine (Spanish)
Find a Clinic Near You
Who Is Running the Clinical Trial?
Boston College
Lead Sponsor