Registry for Juvenile Arthritis
What You Need to Know Before You Apply
What is the purpose of this trial?
This trial aims to collect and analyze data from children in Canada newly diagnosed with Juvenile Idiopathic Arthritis (JIA), a condition causing long-term joint inflammation. Researchers seek to understand disease progression and gather information to improve future treatments and healthcare decisions. Children diagnosed with JIA in the last three months and those who participated in certain past studies might be suitable for this trial. Participants will provide valuable insights that could lead to better management of JIA and potentially improved outcomes for affected children.
As an unphased trial, this study offers a unique opportunity for participants to contribute to foundational research that could shape future JIA treatments and healthcare strategies.
Why are researchers excited about this trial?
The CAPRI National Juvenile Idiopathic Arthritis Registry is unique because it aims to gather comprehensive data on patients with juvenile idiopathic arthritis (JIA) across various treatment regimens. Unlike standard care options like NSAIDs, methotrexate, or biologics, which focus on symptom management, this registry seeks to identify patterns and outcomes that could lead to more personalized and effective treatment strategies. Researchers are excited about this trial because it has the potential to improve our understanding of which therapies work best for different subtypes of JIA, ultimately leading to better, more tailored treatment options for young patients.
Who Is on the Research Team?
Jaime Guzman, MD, FRCPC
Principal Investigator
University of British Columbia
Adam Huber, MD
Principal Investigator
IIWK Health Centre, Halifax, Nova Scotia, Canada
Ciaran Duffy, MD
Principal Investigator
Children's Hospital of Eastern Ontario, Ottawa, Ontario
Gaëlle Chédeville, MD
Principal Investigator
McGill University Health Centre/Research Institute of the McGill University Health Centre
Heinrike Schmeling, MD
Principal Investigator
University of Calgary / Alberta Children's Hospital
Linda Hiraki, MD,FRCPC,MS
Principal Investigator
Hospital for Sick Children (SickKids)
Susanne Benseler, MD, PhD
Principal Investigator
University of Calgary / Alberta Children's Hospital
Marinka Twilt, MD MSCE PhD
Principal Investigator
University of Calgary / Alberta Children's Hospital
Are You a Good Fit for This Trial?
Inclusion Criteria
Timeline for a Trial Participant
Screening
Participants are screened for eligibility to participate in the trial
Registry Enrollment
Participants are enrolled in the CAPRI JIA registry, with initial data collection and consent process
Data Collection
Ongoing data collection from clinic visits, including annual updates and monitoring of disease course and outcomes
Follow-up
Participants are monitored for disease activity, functional disability, pain intensity, and quality of life over one year
What Are the Treatments Tested in This Trial?
Find a Clinic Near You
Who Is Running the Clinical Trial?
University of British Columbia
Lead Sponsor
IWK Health Centre
Collaborator
Alberta Children's Hospital
Collaborator
Children's Hospital of Eastern Ontario
Collaborator
The Hospital for Sick Children
Collaborator
London Health Sciences Centre
Collaborator
Royal University Hospital Foundation
Collaborator
University of Manitoba
Collaborator
McMaster Children's Hospital
Collaborator
University of Calgary
Collaborator