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Exercise Intervention Group for Marfan Syndrome

N/A
Waitlist Available
Led By Shaine A Morris, MD MPH
Research Sponsored by Baylor College of Medicine
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
Be younger than 65 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up 4 months
Awards & highlights

Study Summary

This study is evaluating whether exercise may have positive impacts for individuals with Marfan syndrome.

Eligible Conditions
  • Marfan Syndrome

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~4 months
This trial's timeline: 3 weeks for screening, Varies for treatment, and 4 months for reporting.

Treatment Details

Study Objectives

Outcome measures can provide a clearer picture of what you can expect from a treatment.
Primary outcome measures
Maximum VO2
Secondary outcome measures
6M Timed Hop Test
Aortic Root Distensibility
Aortic Root β-Stiffness index
+24 more

Trial Design

1Treatment groups
Experimental Treatment
Group I: Exercise Intervention GroupExperimental Treatment1 Intervention
Group of up to 20 patients will receive all of the preliminary outcome measure testing (cardiovascular, musculoskeletal, and psychological screening) in addition to exercise intervention education, demonstration, and follow up to ensure compliance and safety.

Find a Location

Who is running the clinical trial?

The Marfan FoundationUNKNOWN
2 Previous Clinical Trials
131 Total Patients Enrolled
2 Trials studying Marfan Syndrome
131 Patients Enrolled for Marfan Syndrome
Baylor College of MedicineLead Sponsor
1,001 Previous Clinical Trials
6,002,229 Total Patients Enrolled
1 Trials studying Marfan Syndrome
50 Patients Enrolled for Marfan Syndrome
Shaine A Morris, MD MPHPrincipal InvestigatorBaylor College of Medicine

Frequently Asked Questions

These questions and answers are submitted by anonymous patients, and have not been verified by our internal team.

Who else is applying?

What state do they live in?
Florida
How old are they?
18 - 65
What site did they apply to?
Texas Children's Hospital
What portion of applicants met pre-screening criteria?
Met criteria
~5 spots leftby Apr 2025