60 Participants Needed

Tech-Based Caregiver Support for Alzheimer's Disease

(TACAD Trial)

Recruiting at 2 trial locations
EI
WC
WC
Overseen ByWonshik Chee, PhD
Age: 18+
Sex: Female
Trial Phase: Academic
Sponsor: University of Texas at Austin
No Placebo GroupAll trial participants will receive the active study treatment (no placebo)

What You Need to Know Before You Apply

What is the purpose of this trial?

The purpose of the proposed study is to preliminarily evaluate Technology-based information and coaching/support program that is tailored for Asian American midlife women who are family caregivers of patients living with Alzheimer's disease (TACAD) in improving health outcomes of Asian American midlife women who are family caregivers of persons living with Alzheimer's disease (AACA) and their care recipients.

Will I have to stop taking my current medications?

The trial information does not specify whether you need to stop taking your current medications.

Is the tech-based caregiver support for Alzheimer's disease safe for humans?

The studies reviewed focus on the feasibility and acceptability of caregiver interventions, but they do not provide specific safety data for the tech-based caregiver support. However, caregivers who participated in these interventions found them informative and engaging, suggesting they were generally well-received.12345

How is the TACAD treatment different from other Alzheimer's disease treatments?

TACAD is unique because it is a technology-based program specifically designed to support Asian American midlife women who are family caregivers of Alzheimer's patients, focusing on culturally-responsive education and coaching to help them manage the complex and unpredictable nature of the disease.14678

What data supports the effectiveness of the treatment Tech-Based Caregiver Support for Alzheimer's Disease?

Research shows that internet-based support services for Asian American caregivers, like the one developed for Chinese caregivers, are feasible and can improve caregivers' knowledge and self-efficacy in seeking support. Additionally, a pilot intervention for Vietnamese American caregivers was well-received and led to increased Alzheimer's knowledge and confidence in accessing support services.1491011

Who Is on the Research Team?

EI

Eun-Ok Im, PhD, MPH

Principal Investigator

University of Texas at Austin

Are You a Good Fit for This Trial?

This trial is for Asian American women, aged 40-65, who are Chinese or Korean and care for family members with early to middle-stage Alzheimer's. They must read/write English, Mandarin, or Korean, live in the U.S., have internet access, and provide at least 4 hours of daily unpaid care without plans for institutionalizing the patient within six months.

Inclusion Criteria

Reside in the U.S.
Family caregivers of PLAD
Caregivers may or may not reside with their care recipient
See 4 more

Exclusion Criteria

Those who used the AA website previously and/or participated in other studies related to AD

Timeline for a Trial Participant

Screening

Participants are screened for eligibility to participate in the trial

2-4 weeks

Treatment

Participants engage in a technology-based program for 3 months, with weekly group and individual coaching/support for the intervention group.

12 weeks
Weekly virtual interactions

Follow-up

Participants are monitored for changes in caregiver and care recipient outcomes through Internet surveys.

4 weeks
1 visit (virtual)

What Are the Treatments Tested in This Trial?

Interventions

  • Alzheimer's Association website
  • TACAD
Trial Overview The study tests a program called TACAD against using the Alzheimer's Association website. It aims to see if TACAD can better improve health outcomes for these caregivers and their patients living with Alzheimer's disease by providing tailored information and coaching/support.
How Is the Trial Designed?
2Treatment groups
Experimental Treatment
Active Control
Group I: Intervention GroupExperimental Treatment2 Interventions
Patient will use TACAD and the Alzheimer's Association Website
Group II: Active Control GroupActive Control1 Intervention
Patient will use only the Alzheimer's Association Website

Find a Clinic Near You

Who Is Running the Clinical Trial?

University of Texas at Austin

Lead Sponsor

Trials
387
Recruited
86,100+

Emory University

Lead Sponsor

Trials
1,735
Recruited
2,605,000+

Published Research Related to This Trial

A new internet-based support service for Chinese caregivers of Alzheimer's patients was developed, featuring a bilingual email application and informational website to meet their needs for resources in both Chinese and English.
Usability testing showed that while the interface effectively supported its main functions, there are opportunities for refinement to enhance user experience.
Development and iterative refinement of an internet-based service for Chinese family caregivers of people with Alzheimer Disease.Chiu, T., Lottridge, D.[2018]
A pilot intervention for Vietnamese American caregivers of individuals with Alzheimer's disease was well-received, with 11 out of 14 enrolled participants completing the program and providing positive feedback.
Post-intervention, caregivers showed increased knowledge about Alzheimer's disease and improved self-efficacy in seeking support services, with these benefits maintained at a 3-month follow-up.
Community-Engaged Research with Vietnamese Americans to Pilot-Test a Dementia Caregiver Intervention.Meyer, OL., Sun, M., Do, T., et al.[2022]
Vietnamese American caregivers of individuals with Alzheimer's disease (AD) face significant challenges due to a lack of knowledge about the disease, which affects their ability to manage care effectively.
The study highlights the need for culturally-responsive education and outreach from healthcare workers to help these families recognize early symptoms of AD and improve their caregiving experience.
"I was Confused About How to Take Care of Mom Because this Disease is Different Everyday": Vietnamese American Caregivers' Understanding of Alzheimer's Disease.Nguyen, H., Zaragoza, M., Wussler, N., et al.[2022]

Citations

Development and iterative refinement of an internet-based service for Chinese family caregivers of people with Alzheimer Disease. [2018]
Community-Engaged Research with Vietnamese Americans to Pilot-Test a Dementia Caregiver Intervention. [2022]
"I was Confused About How to Take Care of Mom Because this Disease is Different Everyday": Vietnamese American Caregivers' Understanding of Alzheimer's Disease. [2022]
Caring for family members with Alzheimer's disease: perspectives from Chinese American caregivers. [2022]
'It's a lonely journey': caregiving experiences and psychosocial distress among Chinese American dementia family caregivers. [2023]
Learning from recruitment challenges: barriers to diagnosis, treatment, and research participation for Latinos with symptoms of Alzheimer's disease. [2022]
Sources of Caregiving Burden in Middle-Aged and Older Latino Caregivers. [2021]
Resources for Enhancing Alzheimer's Caregiver Health in Vietnam (REACH VN): study protocol for a cluster randomized controlled trial to test the efficacy of a family dementia caregiver intervention in Vietnam. [2023]
Caregiving for Hispanic Alzheimer's disease patients: understanding the problem. [2019]
Information, communication, and online tool needs of Hispanic family caregivers of individuals with Alzheimer's disease and related dementias. [2022]
11.United Statespubmed.ncbi.nlm.nih.gov
Smartphone-Based Health Technologies for Dementia Care: Opportunities, Challenges, and Current Practices. [2020]
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