Ga-DOTATATE PET Imaging for Osteomalacia

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Overseen ByJad Sfeir, MD
Age: 18+
Sex: Any
Trial Phase: Phase 1 & 2
Sponsor: Mayo Clinic
No Placebo GroupAll trial participants will receive the active study treatment (no placebo)

What You Need to Know Before You Apply

What is the purpose of this trial?

This trial explores a new imaging technique called Ga-DOTATATE PET/CT to determine if it can better detect the source of a hormone that causes low phosphate levels, leading to osteomalacia (softening of the bones). The goal is to enhance how doctors identify and treat this condition. Adults previously treated for a specific form of osteomalacia at the Mayo Clinic are ideal candidates for this study. As a Phase 1 and Phase 2 trial, it aims to understand how the technique works and measure its effectiveness in an initial group, offering participants a chance to contribute to groundbreaking research.

Do I need to stop my current medications for this trial?

The trial information does not specify whether you need to stop taking your current medications. It's best to discuss this with the study team or your doctor.

What prior data suggests that this imaging technique is safe?

Research has shown that 68Ga-DOTATATE PET/CT scans have been extensively studied for safety. Most patients find it generally easy to handle, and studies have not reported any major safety issues. In fact, it has been used successfully to diagnose certain tumors without causing significant side effects.

Although this specific trial is in its early stages, the use of 68Ga-DOTATATE PET/CT in other cases suggests it is safe for patients. Discussing any concerns with a doctor is advisable, but the research so far appears promising for safety.12345

Why are researchers excited about this trial?

Unlike traditional treatments for osteomalacia, which often involve vitamin D and phosphate supplements, 68Ga-DOTATATE PET/CT imaging offers a novel approach by utilizing a radioactive tracer, 68Ga-DOTATATE, to visualize areas of the body with abnormal bone metabolism. This technique is unique because it targets somatostatin receptors, providing high-resolution images that can help pinpoint the exact location and extent of bone lesions. Researchers are excited about this method because it could lead to more accurate diagnoses and, in turn, more effective treatment plans for patients with osteomalacia.

What evidence suggests that this imaging technique is effective for osteomalacia?

Research has shown that 68Ga-DOTATATE PET/CT, the imaging method used in this trial, effectively identifies the cause of low phosphate levels in the body. One study found a high accuracy rate of 95.13% in pinpointing the problem. This indicates its ability to correctly detect issues related to low phosphate levels in many cases. Another study demonstrated that this imaging method significantly aided the treatment of 80% of patients. Compared to other imaging techniques, 68Ga-DOTATATE PET/CT has proven superior in locating tumors responsible for these phosphate issues. Overall, these findings suggest that this imaging method is a promising tool for diagnosing and managing conditions related to low phosphate levels.678910

Who Is on the Research Team?

MD

Matthew Drake, MD

Principal Investigator

Mayo Clinic

SM

Stephen M Broski, MD

Principal Investigator

Mayo Clinic

Are You a Good Fit for This Trial?

This trial is for adults over 18 who have been seen at Mayo Clinic, Rochester for FGF23 mediated osteomalacia between 2000 and 2018. Participants must consent to the study. It excludes prisoners, pregnant individuals, those with heritable forms of the condition or those who've already had successful tumor localization and resection.

Inclusion Criteria

I am an adult who was treated for FGF23 related bone disease at Mayo Clinic, Rochester between 2000 and 2018 and agree to join the study.

Exclusion Criteria

Prisoners
My tumor was successfully located and removed.
Subjects who do not consent for the study or withdraw consent during the duration of the study.
See 2 more

Timeline for a Trial Participant

Screening

Participants are screened for eligibility to participate in the trial

2-4 weeks

Imaging

Participants undergo 68Ga-DOTATATE PET/CT imaging to localize phosphaturic mesenchymal tumors

1 day
1 visit (in-person)

Follow-up

Participants are monitored for safety and effectiveness after imaging, with results discussed by the endocrinologist

1 year
Follow-up visit or phone call

What Are the Treatments Tested in This Trial?

Interventions

  • 68Ga-DOTATATE PET/CT
Trial Overview The trial evaluates a new imaging technique called Ga-DOTATATE PET/CT to see if it's better at finding where the hormone causing low phosphate levels in patients with osteomalacia is coming from.
How Is the Trial Designed?
1Treatment groups
Experimental Treatment
Group I: 68Ga-DOTATATE PET/CTExperimental Treatment1 Intervention

Find a Clinic Near You

Who Is Running the Clinical Trial?

Mayo Clinic

Lead Sponsor

Trials
3,427
Recruited
3,221,000+

Citations

Comparison of 18F‐FDG PET/CT and 68Ga‐DOTATATE ...Our results show that 68Ga‐DOTATATE PET/CT is very effective in assessing hypophosphatemia patients with TIO typical symptoms compared with 18F‐FDG. 68Ga ...
Head-to-Head Comparison of 68 Ga-DOTA-TATE and 68 ...The purpose of this study is to compare the sensitivity of 68 Ga-DOTA-JR11 and 68 Ga-DOTA-TATE PET/CT for detecting the responsible tumor of tumor-induced ...
Diagnostic value of 68Ga-DOTA-TATE PET/CT imaging for ...Results of 68Ga-DOTA-TATE PET/CT imaging showed 46 cases were positive, with a diagnostic sensitivity, specificity, and accuracy of 95.13%, 60.00%, 71.43%, ...
Gallium-68-DOTATATE PET/CT for phosphaturic ...Ga-68-DOTATATE PET/CT led to a significant impact on clinical management in 24 (80%) of patients. The presence of DOTATATE-avid fractures was ...
Performance of 68 Ga-DOTA-SST PET/CT, octreoscan ...This meta-analysis demonstrates that somatostatin receptor-based imaging modalities outperformed 18F-FDG PET/CT in the detection of TIO, with 68Ga-DOTA-SST PET/ ...
Gallium-68-DOTATATE PET/CT for phosphaturic ...Ga-68-DOTATATE PET/CT led to a significant impact on clinical management in 24 (80%) of patients. The presence of DOTATATE-avid fractures was ...
68Ga-DOTATATE PET/CT in Oncogenic Osteomalacia68Ga-DOTATATE PET/CT is a novel method that might have improved sensitivity and resolution specifically for SSR-positive tumors, including the causative tumor ...
Oncogenic osteomalacia: role of Ga-68 DOTANOC PET/CT ...The aim of this study was to evaluate the role of 68Ga-DOTANOC positron emission tomography (PET)/CT scan in localization of culprit lesion for biopsy and ...
Tumour-Induced Osteomalacia—A Long Way to the ...Conclusions: [68Ga]Ga-DOTATATE PET/CT is a valuable tool for detecting primary tumours in TIO, aiding in accurate diagnosis and guiding surgery, ...
68Ga-DOTATATE PET/CT in Oncogenic OsteomalaciaData collected at the beginning of a clinical study for all participants and for each arm or comparison group. These data include demographics, such as age, sex ...
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