Peer Mentorship for Sickle Cell Disease
What You Need to Know Before You Apply
What is the purpose of this trial?
This trial aims to determine if a mentor can help young people with sickle cell disease (SCD) manage their condition better. Participants either pair with a mentor who has effectively managed their SCD or join a waitlist to receive a mentor later. The researchers aim to assess the effectiveness of peer mentorship (iPeer2Peer Mentorship) by comparing health outcomes between the two groups. Young people aged 12-18, diagnosed with SCD, who speak English and have internet access might be suitable for this trial. As an unphased trial, this study offers a unique opportunity to explore the potential benefits of mentorship in managing SCD.
Will I have to stop taking my current medications?
The trial information does not specify whether you need to stop taking your current medications. It seems focused on peer mentorship rather than medication changes.
What prior data suggests that this peer mentorship program is safe for youth with Sickle Cell Disease?
Research has shown that the iPeer2Peer mentorship program is safe for people with sickle cell disease (SCD). In past studies, the program proved to be practical and well-received by participants. Teens in the program reported positive experiences without major negative effects. The program pairs young people with a mentor who has successfully managed their SCD. This approach emphasizes social support and self-care, avoiding medication or physical treatments, which reduces the risk of side effects. Overall, evidence suggests that the iPeer2Peer mentorship is well-tolerated and could benefit young people with SCD.12345
Why are researchers excited about this trial?
Researchers are excited about the iPeer2Peer Mentorship program for sickle cell disease (SCD) because it offers a unique approach by leveraging peer support to enhance self-management skills. Unlike traditional treatments that focus on medication or medical interventions, this program pairs young adults with SCD with trained mentors who have successfully managed their condition. This mentorship aims to provide modeling, reinforcement, and social support, empowering participants to take an active role in managing their health. By focusing on peer-driven encouragement and practical advice, the iPeer2Peer Mentorship could fill a crucial gap in care, potentially improving quality of life for individuals with SCD.
What evidence suggests that the iPeer2Peer Mentorship could be effective for Sickle Cell Disease?
Research shows that the iPeer2Peer Mentorship program, available to participants in this trial, can positively affect young people with sickle cell disease (SCD). Studies have found that this program aids young people with long-term illnesses by connecting them with a peer mentor. These mentors, young adults who successfully manage their own SCD, offer guidance and support. Early results suggest that this mentorship helps participants improve their health management and emotional coping skills. Overall, evidence indicates that this program can enhance young people's health management and social well-being.12356
Are You a Good Fit for This Trial?
This trial is for English-speaking youths aged 12-18 with Sickle Cell Disease who have internet access and can use Skype. They should be diagnosed by a hematologist and willing to complete online measures. Those with major illnesses or cognitive impairments, or in other peer support programs cannot join.Inclusion Criteria
Exclusion Criteria
Timeline for a Trial Participant
Screening
Participants are screened for eligibility to participate in the trial
Treatment
Participants in the experimental group receive the iPeer2Peer mentorship program for 15 weeks, involving up to ten Skype calls with a mentor.
Waitlist Control
Control group participants are on a waitlist for 15 weeks before receiving the iPeer2Peer program.
Follow-up
Participants are monitored for health outcomes and program acceptability post-intervention.
What Are the Treatments Tested in This Trial?
Interventions
- iPeer2Peer Mentorship
Trial Overview
The iPeer2Peer program pairs young SCD patients with mentors who manage their condition well. Over 15 weeks, the intervention group will have up to ten calls with their mentor, while the control group waits for a mentor. The study aims to see if this is doable and how it affects health outcomes.
How Is the Trial Designed?
2
Treatment groups
Experimental Treatment
Active Control
In addition to standard care, participants in the experimental group will receive the iPeer2Peer program, a peer mentorship program that will provide modelling and reinforcement of self-management by pre-screened and trained peer mentors (young adults with SCD aged 19-25 who have learned to function successfully with their condition). Mentors will encourage participants to develop and engage in self-management skills and provide social support.
The control group participants will receive standard care and will be on a waitlist to receive the iPeer2Peer program until 15 weeks after completing their baseline questionnaires.
Find a Clinic Near You
Who Is Running the Clinical Trial?
The Hospital for Sick Children
Lead Sponsor
Children's Hospital of Eastern Ontario
Collaborator
Royal University Hospital Foundation
Collaborator
Connecticut Children's Medical Center
Collaborator
Citations
A pilot randomized controlled trial of the iPeer2Peer program ...
The objective of this study was to examine the feasibility and acceptability of an online peer mentoring program (iPeer2Peer program) for adolescents with SCD.
iPeer2Peer Program for Youth With Sickle Cell Disease
The iPeer2Peer Sickle Cell Disease (SCD) study matches youth (12-18 years of age) with SCD to a mentor (trained young adult) who has learned to manage their ...
A Mixed-Methods Study of the iPeer2Peer Program in ...
iPeer2Peer is an evidence-based virtual peer mentorship program that has improved outcomes for youth in several chronic illness populations.
A pilot randomized controlled trial of the iPeer2Peer ...
The objective of this study was to examine the feasibility and acceptability of an online peer mentoring program (iPeer2Peer program) for adolescents with SCD.
Peer Mentorship for Sickle Cell Disease · Info for Participants
The iPeer2Peer Sickle Cell Disease (SCD) study matches youth (12-18 years of age) with SCD to a mentor (trained young adult) who has learned to manage their ...
6.
researchgate.net
researchgate.net/publication/387720050_A_Pilot_Randomized_Controlled_Trial_of_the_iPeer2Peer_Program_in_Adolescents_with_Sickle_Cell_Disease_A_Mixed_Method_StudyA Pilot Randomized Controlled Trial of the iPeer2Peer ...
Topics Reviewed During Peer Mentor Training. Note. SCD: Sickle Cell Disease. Outcomes. Outcome data consisted of participant self-reported questionnaires ...
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