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13 Developmental Encephalopathy Trials Near You
Power is an online platform that helps thousands of Developmental Encephalopathy patients discover FDA-reviewed trials every day. Every trial we feature meets safety and ethical standards, giving patients an easy way to discover promising new treatments in the research stage.
Learn More About PowerLP352 for Epilepsy
Trial Details
Key Eligibility Criteria
324 Participants Needed
LP352 for Epilepsy
Trial Details
Key Eligibility Criteria
320 Participants Needed
LP352 for Dravet Syndrome
Trial Details
Key Eligibility Criteria
160 Participants Needed
NBI-921352 for Epilepsy
Trial Details
Key Eligibility Criteria
52 Participants Needed
ETX101 for Dravet Syndrome
Trial Details
Key Eligibility Criteria
22 Participants Needed
PRAX-562 for Epilepsy
Trial Details
Key Eligibility Criteria
100 Participants Needed
NBI-921352 for Developmental and Epileptic Encephalopathy Syndrome
Trial Details
Key Eligibility Criteria
52 Participants Needed
Gene Therapy for Developmental Encephalopathy
Trial Details
Key Eligibility Criteria
12 Participants Needed
Phenylbutyrate for Neurodevelopmental Disorders
Trial Details
Key Eligibility Criteria
50 Participants Needed
PRAX-222 for Epileptic Encephalopathy
Trial Details
Key Eligibility Criteria
60 Participants Needed
Ketogenic Diet for Infantile Spasms
Trial Details
Key Eligibility Criteria
10 Participants Needed
Metformin for Infant Brain Injury
Trial Details
Key Eligibility Criteria
30 Participants Needed
Carbon Dioxide for Sickle Cell Anemia
Trial Details
Key Eligibility Criteria
120 Participants Needed
Why Other Patients Applied
"I was diagnosed with stage 4 pancreatic cancer three months ago, metastatic to my liver, and I have been receiving and responding well to chemotherapy. My blood work revealed that my tumor markers have gone from 2600 in the beginning to 173 as of now, even with the delay in treatment, they are not going up. CT Scans reveal they have been shrinking as well. However, chemo is seriously deteriorating my body. I have 4 more treatments to go in this 12 treatment cycle. I am just interested in learning about my other options, if any are available to me."
"My orthopedist recommended a half replacement of my right knee. I have had both hips replaced. Currently have arthritis in knee, shoulder, and thumb. I want to avoid surgery, and I'm open-minded about trying a trial before using surgery as a last resort."
"As a healthy volunteer, I like to participate in as many trials as I'm able to. It's a good way to help research and earn money."
"I have dealt with voice and vocal fold issues related to paralysis for over 12 years. This problem has negatively impacted virtually every facet of my life. I am an otherwise healthy 48 year old married father of 3 living. My youngest daughter is 12 and has never heard my real voice. I am now having breathing issues related to the paralysis as well as trouble swallowing some liquids. In my research I have seen some recent trials focused on helping people like me."
"I've been struggling with ADHD and anxiety since I was 9 years old. I'm currently 30. I really don't like how numb the medications make me feel. And especially now, that I've lost my grandma and my aunt 8 days apart, my anxiety has been even worse. So I'm trying to find something new."
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We started Power when my dad was diagnosed with multiple myeloma, and I struggled to help him access the latest immunotherapy. Hopefully Power makes it simpler for you to explore promising new treatments, during what is probably a difficult time.
Frequently Asked Questions
How much do Developmental Encephalopathy clinical trials pay?
Each trial will compensate patients a different amount, but $50-100 for each visit is a fairly common range for Phase 2–4 trials (Phase 1 trials often pay substantially more). Further, most trials will cover the costs of a travel to-and-from the clinic.
How do Developmental Encephalopathy clinical trials work?
After a researcher reviews your profile, they may choose to invite you in to a screening appointment, where they'll determine if you meet 100% of the eligibility requirements. If you do, you'll be sorted into one of the treatment groups, and receive your study drug. For some trials, there is a chance you'll receive a placebo. Across Developmental Encephalopathy trials 30% of clinical trials have a placebo. Typically, you'll be required to check-in with the clinic every month or so. The average trial length for Developmental Encephalopathy is 12 months.
How do I participate in a study as a "healthy volunteer"?
Not all studies recruit healthy volunteers: usually, Phase 1 studies do. Participating as a healthy volunteer means you will go to a research facility several times over a few days or weeks to receive a dose of either the test treatment or a "placebo," which is a harmless substance that helps researchers compare results. You will have routine tests during these visits, and you'll be compensated for your time and travel, with the number of appointments and details varying by study.
What does the "phase" of a clinical trial mean?
The phase of a trial reveals what stage the drug is in to get approval for a specific condition. Phase 1 trials are the trials to collect safety data in humans. Phase 2 trials are those where the drug has some data showing safety in humans, but where further human data is needed on drug effectiveness. Phase 3 trials are in the final step before approval. The drug already has data showing both safety and effectiveness. As a general rule, Phase 3 trials are more promising than Phase 2, and Phase 2 trials are more promising than phase 1.
Do I need to be insured to participate in a Developmental Encephalopathy medical study?
Clinical trials are almost always free to participants, and so do not require insurance. The only exception here are trials focused on cancer, because only a small part of the typical treatment plan is actually experimental. For these cancer trials, participants typically need insurance to cover all the non-experimental components.
What are the newest Developmental Encephalopathy clinical trials?
Most recently, we added Gene Therapy for Developmental Encephalopathy, Metformin for Infant Brain Injury and Ketogenic Diet for Infantile Spasms to the Power online platform.