Registry and Repository for Scleroderma
What You Need to Know Before You Apply
What is the purpose of this trial?
This trial aims to gather information on scleroderma, a complex disease that hardens and tightens skin and connective tissues. Researchers seek to better understand its clinical features, genetics, and biology, hoping this will lead to a future treatment. Individuals diagnosed with scleroderma and over 18 years old may be eligible to participate. The Hospital for Special Surgery hosts the trial to promote further research into this currently untreatable condition.
As an unphased study, participation offers a unique opportunity to contribute to groundbreaking research that could pave the way for future treatments.
Why are researchers excited about this trial?
Researchers are excited about the Scleroderma Registry & Repository at the Hospital for Special Surgery because it aims to collect comprehensive data on patients with scleroderma, a complex autoimmune disease. Unlike existing treatment options that focus on managing symptoms, this registry seeks to provide a deeper understanding of the disease by analyzing patient data over time. This could lead to new insights into disease patterns and potentially pave the way for more targeted and effective treatments in the future. By gathering and examining this data, researchers hope to discover novel biomarkers and therapeutic targets that could revolutionize how scleroderma is treated.
Who Is on the Research Team?
Robert F Spiera, MD
Principal Investigator
Hospital for Special Surgery, New York
Jessica K Gordon, MD
Principal Investigator
Hospital for Special Surgery, New York
Are You a Good Fit for This Trial?
Timeline for a Trial Participant
Screening
Participants are screened for eligibility to participate in the trial
Baseline Assessment
Completion of health questionnaires and optional donation of research bloods
Follow-up
Participants are monitored for safety and effectiveness after baseline assessment
What Are the Treatments Tested in This Trial?
Find a Clinic Near You
Who Is Running the Clinical Trial?
Hospital for Special Surgery, New York
Lead Sponsor