← Back to Search

Genetic Counseling for Genetic Disorders

N/A
Waitlist Available
Research Sponsored by Boston Children's Hospital
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
Be older than 18 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up 6 months
Awards & highlights

Study Summary

This trial will study how giving access to genetic counselors can help people overcome barriers to using genetic medicine.

Who is the study for?
This trial is for members of Inspire.com who either have a genetic disorder or are predisposed to one. It aims to understand and address the challenges they face in accessing genetic medicine.Check my eligibility
What is being tested?
The study is testing if providing online access to a genetic counselor helps overcome barriers compared with those who only use peer-to-peer support without professional guidance.See study design
What are the potential side effects?
Since this intervention involves counseling rather than medication, traditional side effects are not expected; however, participants may experience emotional or psychological responses.

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~6 months
This trial's timeline: 3 weeks for screening, Varies for treatment, and 6 months for reporting.

Treatment Details

Study Objectives

Outcome measures can provide a clearer picture of what you can expect from a treatment.
Primary outcome measures
Qualitative self-report of referrals for clinical genetic services
Secondary outcome measures
Qualitative self-report of specific barriers to the participant accessing genomic medicine
Self-report of specific behaviors to overcome barriers to accessing genetic medicine

Trial Design

2Treatment groups
Experimental Treatment
Active Control
Group I: Virtual Advisory BoardExperimental Treatment1 Intervention
Participants have access to a genetic counselor to answer their questions on accessing genetic medicine.
Group II: Virtual Peer-to-Peer Discussion BoardActive Control1 Intervention
Participants answer each others' questions on the topic of accessing genetic medicine.

Find a Location

Who is running the clinical trial?

National Human Genome Research Institute (NHGRI)NIH
263 Previous Clinical Trials
284,062 Total Patients Enrolled
Boston Children's HospitalLead Sponsor
761 Previous Clinical Trials
5,579,660 Total Patients Enrolled

Media Library

Virtual Advisory Board Clinical Trial Eligibility Overview. Trial Name: NCT05064241 — N/A
Genetic Disorder Research Study Groups: Virtual Peer-to-Peer Discussion Board, Virtual Advisory Board
Genetic Disorder Clinical Trial 2023: Virtual Advisory Board Highlights & Side Effects. Trial Name: NCT05064241 — N/A
Virtual Advisory Board 2023 Treatment Timeline for Medical Study. Trial Name: NCT05064241 — N/A

Frequently Asked Questions

These questions and answers are submitted by anonymous patients, and have not been verified by our internal team.

Are there any opportunities for individuals to enroll in this research endeavor?

"According to clinicaltrials.gov, this medical trial is not presently seeking new patients. This research was initially posted on April 15th 2023 and last revised on the 9th of April 2023; however, there are 79 alternative studies accepting participants currently available."

Answered by AI
Recent research and studies
clinicaltrials.govStudy
Overcoming Barriers to Accessing Genetic Medicine
Catherine Brownstein 2023. "Overcoming Barriers to Accessing Genetic Medicine". ClinicalTrials.gov. https://clinicaltrials.gov/ct2/show/NCT05064241.
~35 spots leftby Apr 2025
Unbiased ResultsWe believe in providing patients with all the options.
Your Data Stays Your DataWe only share your information with the clinical trials you're trying to access.
Verified Trials OnlyAll of our trials are run by licensed doctors, researchers, and healthcare companies.
Back to top