Registry for Brain Tumor
What You Need to Know Before You Apply
What is the purpose of this trial?
This trial aims to gather detailed information about individuals with a specific type of brain tumor linked to neurofibromatosis type 1 (NF1). It will collect medical records and conduct surveys to understand how different treatments affect these tumors and the lives of those affected. By creating a registry (a health information database), researchers hope to improve diagnosis and treatment methods for future patients. Individuals diagnosed with NF1 and a glioma (a type of brain tumor) who are willing to share their health records might be a good fit for this trial. As an unphased study, this trial offers a unique opportunity to contribute to a deeper understanding of NF1-related gliomas, potentially benefiting future patients.
Do I need to stop my current medications for this trial?
The trial information does not specify whether you need to stop taking your current medications. It seems to focus on collecting health information rather than changing treatments.
Why are researchers excited about this trial?
Researchers are excited about the Glioma Developmental and HyperActive Ras Tumor (DHART) Board registry study because it aims to gather comprehensive data on glioma, a type of brain tumor. Unlike traditional treatments like surgery, radiation, and chemotherapy, this registry isn't a treatment itself but a powerful tool for understanding how gliomas develop and respond to various treatments. By collecting detailed patient information, it helps identify patterns and potential new targets for future therapies, paving the way for more personalized and effective treatment strategies. This approach could significantly enhance our understanding of gliomas and improve treatment outcomes over time.
Who Is on the Research Team?
Anna Piotrowski
Principal Investigator
Memorial Sloan Kettering Cancer Center
Are You a Good Fit for This Trial?
Inclusion Criteria
Timeline for a Trial Participant
Screening
Participants are screened for eligibility to participate in the trial
Data Collection
Collection of medical records, scan results, and completion of surveys to create a registry
Follow-up
Participants are monitored for changes in diagnosis, treatment, and quality of life over time
What Are the Treatments Tested in This Trial?
Interventions
- Registry Study
Find a Clinic Near You
Who Is Running the Clinical Trial?
Memorial Sloan Kettering Cancer Center
Lead Sponsor