Registry for Pulmonary Hypertension
(PHBR Trial)
What You Need to Know Before You Apply
What is the purpose of this trial?
This trial aims to create a registry and biorepository to better understand pulmonary hypertension, a condition where high blood pressure affects the lungs and heart. By collecting and studying patient information and samples, researchers hope to improve future treatments. Ideal participants are adults diagnosed with pulmonary hypertension through a specific test called right heart catheterization.
As an unphased trial, this study allows participants to contribute to groundbreaking research that could lead to better treatments for pulmonary hypertension.
Will I have to stop taking my current medications?
The trial information does not specify whether you need to stop taking your current medications.
Why are researchers excited about this trial?
Researchers are excited about the Pulmonary Hypertension Biorepository and Registry because it's not a treatment but a groundbreaking approach to understanding pulmonary hypertension better. Unlike current treatments that focus on managing symptoms, this registry and biorepository aims to collect extensive patient data and biological samples. This comprehensive collection can reveal new insights into the disease's progression and help identify potential targets for future therapies. By building a rich database, researchers hope to pave the way for more personalized and effective treatments down the line.
Who Is on the Research Team?
Luigi R Boccardi, Ed.D., MPH
Principal Investigator
Director of Pulmonary Research
Leslie A Spikes, MD
Principal Investigator
Assistant Professor of Medicine
Are You a Good Fit for This Trial?
Inclusion Criteria
Timeline for a Trial Participant
Screening
Participants are screened for eligibility to participate in the trial
Data Collection
Collect clinically obtained data from current and deceased patients with pulmonary hypertension to support research
Biospecimen Collection
Establish a collection of biospecimens from patients with pulmonary hypertension and correlate them to longitudinally collected individual patient data
Collaboration
Provide biospecimens to researchers investigating pulmonary hypertension
Follow-up
Participants are monitored for safety and effectiveness after treatment
What Are the Treatments Tested in This Trial?
Interventions
- Registry and Biorepository
Find a Clinic Near You
Who Is Running the Clinical Trial?
University of Kansas Medical Center
Lead Sponsor
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