Web-Based App for Sickle Cell Disease
Trial Summary
Do I need to stop my current medications for this trial?
The trial information does not specify whether you need to stop taking your current medications.
What data supports the effectiveness of the treatment Web-Based App for Sickle Cell Disease?
Research shows that using digital educational tools can improve patient knowledge and self-management in chronic conditions like sickle cell disease. For example, eHealth tools have been reported to enhance health literacy and quality of life for patients with sickle cell disease, and innovative educational methods have been shown to improve knowledge and reduce hospitalizations.12345
Is the web-based app for sickle cell disease safe for humans?
There is no specific safety data available for the web-based app for sickle cell disease or its related names. However, similar digital tools like the 'Safe Patients' app have been used to increase patient knowledge about safety issues, suggesting that educational apps can be safely implemented in healthcare settings.678910
How does the web-based app for sickle cell disease differ from other treatments?
The web-based app for sickle cell disease is unique because it focuses on self-management by allowing patients to track symptoms and health history through a mobile platform. This approach empowers patients and their families to manage the condition more effectively at home, which is different from traditional treatments that primarily rely on medical interventions.1112131415
What is the purpose of this trial?
The purpose of this study is to find out whether a web-based intervention using a mobile app is helpful for teens and young adults with sickle cell disease (SCD) in learning how to care for and manage their symptoms.
Eligibility Criteria
This trial is for teens and young adults with any type of Sickle Cell Disease who own a mobile device compatible with the app, have internet access, and can understand English. It's not for those planning to move or transition to adult care soon, or with neurocognitive issues affecting their ability to participate.Inclusion Criteria
Exclusion Criteria
Timeline
Screening
Participants are screened for eligibility to participate in the trial
Intervention
Participants receive a web-based intervention using a mobile app to facilitate self-management behaviors
Control
Participants receive enhanced usual care as a control group
Follow-up
Participants are monitored for self-management behaviors, quality of life, and healthcare utilization
Treatment Details
Interventions
- Electronic educational materials
- Voice Crisis Alert V2
Find a Clinic Near You
Who Is Running the Clinical Trial?
Medical University of South Carolina
Lead Sponsor
National Institute of Nursing Research (NINR)
Collaborator