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Palliative Care for Parkinson's Disease (COPE-PD Trial)
COPE-PD Trial Summary
This trial will test if palliative care training for doctors and telemedicine support services improve quality of life for patients with Parkinson's disease and Lewy Body Dementia.
COPE-PD Trial Eligibility Criteria
Inclusion Criteria
You may be eligible if you check “Yes” for the criteria belowCOPE-PD Trial Timeline
Treatment Details
Study Objectives
Outcome measures can provide a clearer picture of what you can expect from a treatment.COPE-PD Trial Design
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Who is running the clinical trial?
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- I have a serious illness that needs comfort care, like metastatic cancer.I am currently receiving care to ease symptoms or hospice services.I am willing and able to follow the study's procedures.I am over 40 and diagnosed with Parkinson's or a similar condition.
- Group 1: Usual Care
- Group 2: Online Community-Supported Palliative Care Intervention
- No Placebo-Only Group - All patients enrolled in this study will receive some form of active treatment.
- Screening: It may take up to 3 Weeks to process to see if you qualify in this trial.
- Treatment: The duration you will receive the treatment varies.
- Follow Ups: You may be asked to continue sharing information regarding the trial for 6 Months after you stop receiving the treatment.
Frequently Asked Questions
What is the sample size of this scientific experiment?
"Affirmative. Clinicaltrials.gov indicates that this trail is currently recruiting participants, with the initial posting date being April 26th 2022 and last update on May 2nd 2022. The study requires 710 trialists to be sourced from 1 location."
Could you elucidate the key aims of this research endeavor?
"The primary measure of success for this 6-month trial is the Quality of Life: Alzheimer's disease (QOL-AD) scale. Additionally, Carepartner Measures: Functional Assessment of Chronic Illness Therapy-Spiritual Wellbeing (FACIT-SP 12 Item), Patient Measures Prolonged Grief Questionnaire (PG-12), and Edmonton Symptom Assessment Scale will be assessed to ascertain secondary objectives. Respectively, these scales range from 10 - 50; 0 – 130 with higher scores indicating a worse outcome; and 1–10 per item respectively."
Are there any opportunities to join the current research endeavor?
"Affirmative. Records on clinicaltrials.gov support that this research is currently recruiting patients; it was first posted on April 26th 2022 and most recently modified May 2nd 2022. 710 individuals need to be enrolled at one medical site for the study's completion."
Who else is applying?
What state do they live in?
What site did they apply to?
What portion of applicants met pre-screening criteria?
How many prior treatments have patients received?
Why did patients apply to this trial?
How responsive is this trial?
Typically responds via
Most responsive sites:
- University of Rochester Medical Center for Health + Technology: < 24 hours
Average response time
- < 1 Day
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