Educational Videos for Sarcoma

Overseen By Clinical Trials Manager

Age: 18+

Sex: Any

Trial Phase: Academic

Sponsor: Mount Sinai Hospital, Canada

Disqualifiers: Informed consent, Previous oncologist visit

No Placebo Group All trial participants will receive the active study treatment (no placebo)

Compensation: Varies

Number of Visits: 1

100 Participants Needed

What You Need to Know Before You Apply

What is the purpose of this trial?

This trial aims to determine if educational videos can help individuals with advanced metastatic sarcoma better understand their condition and treatment options. Participants will watch four videos before their first appointment with an oncologist and complete surveys to assess their understanding. This trial suits those diagnosed with advanced metastatic sarcoma or their caregivers who have not yet started treatment and are comfortable reading and writing in English. As an unphased trial, it offers a unique opportunity to enhance understanding and actively participate in the care journey.

Do I have to stop taking my current medications for this trial?

The trial does not specify whether you need to stop taking your current medications. It focuses on educational videos and does not mention any medication requirements.

What prior data suggests that these educational videos are safe for patients?

A previous study found that educational videos about cancer, including sarcoma, helped people better understand their condition. The videos covered topics such as the nature of the disease, common myths, and treatment options. No negative effects were reported from watching these videos, indicating that they are generally safe and well-received. Viewers found the videos helpful and experienced no adverse side effects. ^{1 2 3}

Why are researchers excited about this trial?

Researchers are excited about using educational videos for sarcoma because they offer a unique approach compared to typical medical treatments. Unlike traditional methods like surgery, chemotherapy, and radiation, which target the cancer directly, educational videos aim to empower patients by improving their understanding of the disease and its management. This method could enhance patient engagement, lead to better adherence to treatment plans, and potentially improve overall outcomes. By providing accessible information, these videos might also reduce anxiety and help patients make informed decisions about their care.

What evidence suggests that these educational videos are effective for improving sarcoma knowledge?

Research has shown that educational videos, which participants in this trial may receive, can help patients better understand sarcoma and its treatment options. Studies have found that watching videos about sarcoma enhances patients' knowledge of their condition and treatments before consulting a doctor. Clinics have tested this method, demonstrating an increase in patients' knowledge. By using these videos, patients become more informed and prepared to discuss their care. Early results suggest that this approach can improve patient satisfaction and involvement with their treatment plan. ^{1 4 5}

Are You a Good Fit for This Trial?

This trial is for individuals newly diagnosed with lymphoma or sarcoma. Participants should be preparing for their first medical oncology clinic appointment and willing to watch educational videos as well as complete surveys about their understanding of the disease and treatment options.

Inclusion Criteria

I have not had any drug treatments for sarcoma.

Willing/able to complete questionnaires

Signed written and voluntary informed consent

Exclusion Criteria

Inability to provide informed consent

Previously seen by a medical oncologist for their sarcoma

Timeline for a Trial Participant

Screening

Participants are screened for eligibility to participate in the trial

1-2 weeks

Educational Intervention

Participants watch four educational videos before their first appointment with a medical oncologist

up to 2 weeks

1 visit (in-person)

Follow-up

Participants complete surveys to assess their understanding of sarcoma and its treatment options before and after their first medical oncology clinic appointment

up to 2 weeks

What Are the Treatments Tested in This Trial?

Interventions

• Educational videos

Trial Overview The study is testing whether watching four educational videos before the first oncology clinic visit can improve patients' knowledge about sarcoma, its treatments, and what to expect. The effectiveness will be measured using surveys completed by participants before and after the appointment.

How Is the Trial Designed?

Group I: Standard of Care Experimental Treatment 1 Intervention

Group II: Educational Videos Experimental Treatment 1 Intervention

Who Is Running the Clinical Trial?

Mount Sinai Hospital, Canada

Lead Sponsor

Trials

210

Recruited

70,700+

Published Research Related to This Trial

Educating cancer patients about their condition and treatment can enhance their autonomy and improve treatment compliance, leading to better overall care during complex and long-term therapies.

This education should be supported by well-trained practitioners and include written and video resources, with a focus on evaluating its effectiveness and cost-benefit to ensure improvements in treatment quality and patient experience.

NCBI (Pubmed)

pubmed.ncbi.nlm.nih.gov

[Education of cancer patients]. Hoerni, B., Soubeyran, P.[2017]

Preoperative education, particularly through pamphlets, significantly enhances patients' knowledge and ability to perform postoperative activities, suggesting that written materials are effective tools for informing patients before surgery.

While videos as a teaching method have potential benefits for improving patient understanding, they have not been rigorously evaluated, indicating a need for further research to confirm their effectiveness compared to other educational formats.

NCBI (Pubmed)

pubmed.ncbi.nlm.nih.gov

Knowledge retention from preoperative patient information. Stern, C., Lockwood, C.[2011]

Citations

1. ascopubs.org ascopubs.org/doi/abs/10.1200/JCO.2025.43.16_suppl.TPS9047

Evaluating the use of educational videos in a medical ... This study evaluates the impact of sarcoma-specific educational videos on improving pts' knowledge of their disease and treatment options before ...

2. pmc.ncbi.nlm.nih.gov pmc.ncbi.nlm.nih.gov/articles/PMC8863121/

Implementation and Evaluation of Educational Videos to ... We developed cancer educational videos featuring Malawian providers and played them in the KCH oncology clinic. The videos addressed cancer-related topics.

3. researchgate.net researchgate.net/publication/392301108_Evaluating_the_use_of_educational_videos_in_a_medical_oncology_sarcoma_clinic_to_improve_patient_knowledge_and_satisfaction

Evaluating the use of educational videos in a medical ... This study evaluates the impact of sarcoma-specific educational videos on improving pts' knowledge of their disease and treatment options before their first ...

4. researchgate.net researchgate.net/publication/383381321_Evaluation_of_YouTube_videos_on_soft_tissue_sarcomas_How_reliable_are_YouTube_shares

(PDF) Evaluation of YouTube videos on soft tissue sarcomas Results: Of the 50 YouTube videos evaluated, the most extended video was 1 hour 29 minutes 28 seconds, while the shortest video was 45 seconds.

5. asco.org asco.org/abstracts-presentations/ABSTRACT503200

Evaluating the use of educational videos in a medical ... This study evaluates the impact of sarcoma-specific educational videos on improving pts' knowledge of their disease and treatment options before their first ...