Self-Care Training for Dementia Caregivers

(Care2 Trial)

EC
AL
Overseen ByAda Lopaczynski, MS
Age: 18+
Sex: Any
Trial Phase: Academic
Sponsor: University of Pittsburgh
No Placebo GroupAll trial participants will receive the active study treatment (no placebo)

What You Need to Know Before You Apply

What is the purpose of this trial?

This trial tests a new approach to help caregivers of people with dementia care for themselves better. Caregivers use an app and wear an Apple Watch to receive feedback on their sleep and daily routines, along with weekly support calls from health coaches. The trial aims to reduce stress and feelings of being overwhelmed from caregiving. It suits caregivers who live with their care recipient, experience stress from caregiving, and are open to using new technology to improve their well-being. As an unphased trial, it offers caregivers a unique opportunity to explore innovative ways to enhance their well-being and manage stress effectively.

Do I need to stop my current medications to join the trial?

The trial information does not specify whether you need to stop taking your current medications. It seems focused on behavioral health and self-care, so it's unlikely that medication changes are required.

What prior data suggests that this behavioral health intervention is safe for dementia caregivers?

Research has shown that methods like motivational interviewing and self-monitoring are generally easy for participants to manage. In similar studies, motivational interviewing helped older patients adhere to their medication schedules without major safety issues. Additionally, other apps for behavior monitoring have been used in health programs without significant problems.

These findings suggest that the methods in this trial are safe. They aim to help caregivers improve daily routines and reduce stress without risky procedures or medications. Since this trial focuses on behavior rather than drugs, it is expected to be less risky than drug trials. Participants can feel confident knowing that similar methods have been safely used in other studies.12345

Why are researchers excited about this trial?

Researchers are excited about this trial because it explores innovative ways to support dementia caregivers through behavioral self-monitoring and motivational interviewing. Unlike traditional support groups or therapy sessions, this approach uses the myRhythmWatch app to help caregivers track their sleep and activity over six weeks, providing personalized insights and feedback. This method empowers caregivers to make data-driven changes to their routines, potentially improving both their well-being and their ability to care for loved ones. By combining technology with motivational health coaching, this trial offers a proactive and accessible solution that could transform caregiver support.

What evidence suggests that this trial's treatments could be effective for reducing psychological distress and caregiver burden?

Research has shown that tracking personal behavior and using motivational interviewing can help caregivers manage stress and improve well-being. Motivational interviewing encourages positive changes, enhancing self-care. Although limited research exists specifically for dementia caregivers, early results suggest it might reduce their stress. In this trial, participants in the Caregiver Intervention arm will use digital tools like the myRhythmWatch app, which provides personalized feedback to help caregivers develop healthier habits. While more research is needed, these methods appear promising for supporting the mental health of those caring for people with dementia.12678

Who Is on the Research Team?

ST

Sarah T Stahl, PhD

Principal Investigator

University of Pittsburgh, Assistant Professor of Psychiatry and Clinical and Translational Science

Are You a Good Fit for This Trial?

This trial is for family caregivers over 50 who provide at least 8 hours of care per week to a relative with dementia and live in the same household. They should be struggling with self-care, particularly sleep, exercise, or social activities, and have mild psychological distress. Those planning to institutionalize their loved one within a year or living in nursing homes cannot join.

Inclusion Criteria

I struggle with self-care activities like sleeping, exercising, or socializing.
I am a spouse, child, or considered family to the person needing care.
I am 50 years old or older.
See 3 more

Exclusion Criteria

Living in a nursing home
Does not live in the same household as the care recipient
I plan to place a loved one in a care facility within the next year.
See 1 more

Timeline for a Trial Participant

Screening

Participants are screened for eligibility to participate in the trial

2-4 weeks

Intervention

Participants use the myRhythmWatch app and receive motivational health coaching for self-care

6 weeks
Weekly health coaching calls

Follow-up

Participants are monitored for changes in depressive symptoms, anxiety symptoms, and caregiver burden

3 months
Post-intervention assessment and 3-month follow-up

What Are the Treatments Tested in This Trial?

Interventions

  • Behavioral Self-Monitoring + Motivational Interviewing
  • Enhanced Usual Care
Trial Overview The study tests a behavioral health intervention combining digital monitoring via an Apple Watch app that tracks sleep-wake rhythms and weekly motivational calls from health coaches for six weeks. The aim is to help caregivers establish regular self-care routines to reduce stress and burden.
How Is the Trial Designed?
1Treatment groups
Experimental Treatment
Group I: Caregiver InterventionExperimental Treatment1 Intervention

Find a Clinic Near You

Who Is Running the Clinical Trial?

University of Pittsburgh

Lead Sponsor

Trials
1,820
Recruited
16,360,000+

Activity Rhythm Solutions Corporation

Collaborator

Trials
1
Recruited
20+

Oregon Health and Science University

Collaborator

Trials
1,024
Recruited
7,420,000+

National Institute on Aging (NIA)

Collaborator

Trials
1,841
Recruited
28,150,000+

Citations

NCT05309577 | Self-Care for Dementia CaregiversThe Self-care for Dementia Caregivers Study is a behavioral health intervention that uses digital monitoring tools and motivational health coaching.
Use of Motivational Interviewing in Older Patients with ...The scoping review showed that the use of motivational interviewing is still limited in MCCs. It was used mainly to improve patient medication adherence.
Effectiveness of Caregiver-Provided Individual Cognitive ...Caregiver-provided individual cognitive interventions had several beneficial effects in cognitive domains, including memory, verbal fluency, attention, problem ...
The Effectiveness of a Motivational Interviewing...Motivational interviewing performed by nurses was not effective in improving mutuality in patients with HF and caregivers.
Evaluating the Implementation Fidelity of a Motivational ...The pilot study evaluated the preliminary efficacy of a self-care virtual intervention, Virtual Caregiver Coach for You (ViCCY), for bvFTD ...
Exploring dementia family carers' self-initiated strategies in ...Carer's self-initiated management strategies of behavioural and psychological symptoms of dementia (BPSD) can inform intervention development.
Article The Gray Matters App Targeting Health Behaviors ...We examine if the Gray Matters intervention (education and behavioral self-monitoring app targeting lifestyle risks for Alzheimer's disease [AD]) affected ...
iCare4Me for FTD: A pilot randomized study to improve self ...Caregiver self-care (primary outcome), stress, depression, coping, and patient behavioral symptoms were collected at enrollment and 3 and 6 ...
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