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Genetic Registry for Parkinson's Disease
N/A
Recruiting
Led By James Beck, PhD
Research Sponsored by Parkinson's Foundation
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial Must have
Willingness to undergo genetic testing, and choose to be informed of genetic testing results for GBA, LRRK2 and 5 additional PD related genes (SNCA, VPS35, PRKN, PINK-1, PARK7)
Be older than 18 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up 6 months
Awards & highlights
Study Summary
This trial will create a central repository for data on patients with Parkinson's disease, in order to help future research on the disease.
Who is the study for?
This trial is for adults with a probable diagnosis of Parkinson's Disease who are willing to undergo genetic testing and can give informed consent. They should be able to complete surveys and may include family members if additional genetic confirmation is needed. It excludes those under 18, recent bone marrow transplant or blood transfusion recipients, and individuals with atypical parkinsonian disorders or active blood cancers.Check my eligibility
What is being tested?
The study aims to create a central database by collecting genomic data from participants related to Parkinson's Disease. This registry will support future research on the genetics of Parkinson’s Disease by analyzing genes like GBA, LRRK2, SNCA, VPS35, PRKN, PINK-1, PARK7.See study design
What are the potential side effects?
Since this trial involves genetic testing rather than drug intervention, typical medication side effects are not applicable. However, there might be some emotional or psychological impact due to learning about one's genetic predisposition to certain aspects of Parkinson's Disease.
Eligibility Criteria
Inclusion Criteria
You may be eligible if you check “Yes” for the criteria belowSelect...
I agree to genetic testing for Parkinson's disease and want to know the results.
Timeline
Screening ~ 3 weeks3 visits
Treatment ~ Varies
Follow Up ~ 6 months
Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~6 months
Treatment Details
Study Objectives
Outcome measures can provide a clearer picture of what you can expect from a treatment.Primary outcome measures
Educating people with Parkinson's of their genetic mutation status through genetic testing and counseling
Prevalence of Parkinson's related genetic mutations in an convenience cohort
Find a Location
Who is running the clinical trial?
Parkinson's Study GroupUNKNOWN
Indiana UniversityOTHER
980 Previous Clinical Trials
968,303 Total Patients Enrolled
Fulgent GeneticsUNKNOWN
Media Library
Eligibility Criteria:
This trial includes the following eligibility criteria:- I am younger than 18 years old.I have been diagnosed with a rare form of Parkinson's disease.My family may join the study if genetic testing is needed.I can understand and have signed the consent forms.I have received a blood transfusion in the last 3 months.I agree to genetic testing for Parkinson's disease and want to know the results.I had a bone marrow transplant within the last 5 years.I have an active blood cancer like lymphoma or leukemia.I can complete study tasks, whether online, in-person, or on paper.
Research Study Groups:
This trial has the following groups:Awards:
This trial has 1 awards, including:- No Placebo-Only Group - All patients enrolled in this study will receive some form of active treatment.
Timeline:
This trial has the following timeline:- Screening: It may take up to 3 Weeks to process to see if you qualify in this trial.
- Treatment: The duration you will receive the treatment varies.
- Follow Ups: You may be asked to continue sharing information regarding the trial for 6 Months after you stop receiving the treatment.
Parkinson's Disease Patient Testimony for trial: Trial Name: NCT04994015 — N/A
Frequently Asked Questions
These questions and answers are submitted by anonymous patients, and have not been verified by our internal team.
What is the current participant size of this research endeavor?
"Affirmative. According to the evidence on clinicaltrials.gov, this medical trial initiated in December 2020 and has since been updated in August 2021 is still enrolling participants. The team requires around 15000 individuals from 6 separate sites for their study."
Answered by AI
What is the total number of clinical facilities carrying out this investigation?
"Currently, 6 sites across the United States are recruiting patients for this trial. These include locations in Atlanta, Aventura and Spokane amongst a few others. If you opt to participate it is recommended that you select the clinic closest to your home in order to lessen travel inconveniences."
Answered by AI
Are applicants currently being accepted for this experiment?
"Affirmative. The information accessible on clinicaltrials.gov establishes that this medical trial commenced recruiting patients on the 20th of December 2020, and has since been edited as recently as 17 August 2021. A total of 15000 participants are needed across 6 designated sites."
Answered by AI
Who else is applying?
What state do they live in?
Colorado
What site did they apply to?
University of Colorado
University of California San Francisco (UCSF)
Morehouse College
What portion of applicants met pre-screening criteria?
Met criteria
How many prior treatments have patients received?
0
Why did patients apply to this trial?
I’m curious what the treatment protocol will be. I am currently on no medication’s.
PatientReceived no prior treatments
How responsive is this trial?
Most responsive sites:
- University of Colorado: < 48 hours
Average response time
- < 2 Days
Typically responds via
Phone Call
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