This trial is evaluating whether Tele-neurohub will improve 1 primary outcome and 2 secondary outcomes in patients with Lewy Body Disease. Measurement will happen over the course of 6 months.
This trial requires 106 total participants across 2 different treatment groups
This trial involves 2 different treatments. Tele-neurohub is the primary treatment being studied. Participants will all receive the same treatment. There is no placebo group. The treatments being tested are not being studied for commercial purposes.
"The incidence of LBD in the US is low, with a lower incidence among Hispanics. The occurrence of LBD cases varies between geographic areas and appears to do so based on geographic factors such as climate, humidity, and housing conditions, as well as racial differences in the rate of infectious diseases between groups in these areas." - Anonymous Online Contributor
"LBD is not a benign or curable disease and cannot be cured. For symptomatic patients, medical treatment may improve the symptoms of LBD and can be an effective alternative to surgery for the relief of symptoms. For asymptomatic individuals at risk of developing dementia, there are no cures. Surgery is only indicated in the most severe cases of the disease." - Anonymous Online Contributor
"Treatment depends on the specific circumstances of the case and involves corticosteroids as the first-line drug and second-line treatment. However, other drugs have been used historically with similar success.\n" - Anonymous Online Contributor
"The present results suggest an association between hippocampal lewy body density and hippocampal atrophy, and they suggest that lewy body-related hippocampal dysfunction may occur at levels of lewy body disease prevalence thought to be at a lower point of diagnostic threshold." - Anonymous Online Contributor
"Recent findings found that in lewy body disease, the accumulation of amyloid beta in the extracellular space of neurons is associated with an increase in the amount of amyloid beta in the cytoplasm. It also concluded that amyloid precursor protein production is inversely related to the accumulation of amyloid beta and this in turn is probably related to the development of lewy body disease." - Anonymous Online Contributor
"Though this diagnosis is not officially recognized in DSM-5, it has a high degree of concordance with the classic dementia criteria. However, it is not specific to any specific diseases that can resemble it.\n" - Anonymous Online Contributor
"The study results suggest that LBD may run in families. This finding can be further studied by genetical analysis of first-degree relatives of LBD patients to collect further data for this potentially important observation." - Anonymous Online Contributor
"While [LBD] can appear very serious and alarming, [it is] not [always] life-threatening. [It may] be difficult to differentiate [between LBD and another dementia such as vascular dementia or Alzheimer's Disease." - Anonymous Online Contributor
"Tele-neurohub is a useful new way of treating people at high risk for neurodegenerative disease. Results from a recent clinical trial add further supports the argument that it is a viable and safe technique with significant potential to meet the challenges of medical and technological advances." - Anonymous Online Contributor
"Therapeutic tele-neurohubs will give patients with dementia a chance to benefit from live consultations to manage their disease in a way they couldn't manage alone." - Anonymous Online Contributor
"A tele-neurohub worked better in older females. The use of tele-neurohub would be an ideal tool to make it accessible to many of the patients who will not travel far for diagnostic or treatment purposes." - Anonymous Online Contributor
"Patients with suspected diagnoses of [LBD] usually visit a neurologist for specialist opinion, especially those undergoing treatment for epilepsy. Neurologists can offer patients a clear and comprehensive diagnosis as well as information about [LBD]. An appropriate treatment plan, focusing on psychosocial consultation, information support, and psychosocial interventions, may enhance the management of these patients." - Anonymous Online Contributor