Patient-Reported Outcomes for Neuroendocrine Tumors
(NET-PRO Trial)
What You Need to Know Before You Apply
What is the purpose of this trial?
This trial explores how different treatments for neuroendocrine tumors (NETs) affect people's lives. Researchers compare various therapies, such as biologic therapy and chemotherapy, to identify the best ways to reduce side effects and enhance treatment effectiveness. Participants will share their experiences through surveys about their quality of life and treatment choices. This trial suits those diagnosed with gastrointestinal or lung NETs from 2018 to 2024. As a Phase 2 trial, the research measures treatment effectiveness in an initial, smaller group, allowing participants to contribute to early-stage treatment evaluation.
Why are researchers excited about this trial?
Researchers are excited about this trial because it focuses on patient-reported outcomes for neuroendocrine tumors, which is a fresh approach compared to traditional clinical measures. Unlike standard treatments that primarily focus on tumor shrinkage or biochemical markers, this trial seeks to understand the real-world impact of treatments on patients' quality of life. By prioritizing the patients' perspectives, researchers hope to gather insights that could lead to more personalized and effective care strategies for those living with neuroendocrine tumors. This shift in focus could potentially reshape how treatments are evaluated and improve the overall treatment experience for patients.
Who Is on the Research Team?
Michael O'Rorke, PhD
Principal Investigator
University of Iowa
Are You a Good Fit for This Trial?
Inclusion Criteria
Timeline for a Trial Participant
Screening
Participants are screened for eligibility to participate in the trial
Treatment
Participants receive various therapeutic options including biologic therapy, liver directed therapy, radiotherapy, and chemotherapy
Follow-up
Participants are monitored for safety and effectiveness after treatment, with medical record outcomes followed up to 60 months
What Are the Treatments Tested in This Trial?
Find a Clinic Near You
Who Is Running the Clinical Trial?
University of Iowa
Lead Sponsor
University of Pittsburgh Medical Center
Collaborator
Neuroendocrine Tumor Research Foundation
Collaborator
University of Texas Southwestern Medical Center
Collaborator
Northern California CarciNET Community
Collaborator
University of Utah
Collaborator
Medical University of South Carolina
Collaborator
Healing NET Foundation
Collaborator
Vanderbilt University Medical Center
Collaborator
Allina Health System
Collaborator