Storytelling for Kidney Transplant Promotion
(LDKT Stories Trial)
Trial Summary
What is the purpose of this trial?
This study will examine the effectiveness of first-person storytelling in encouraging patients with end-stage renal disease to pursue Living Donor Kidney Transplant (LDKT). The Living Donation Storytelling Library LDSP is a library of videos from donors and recipients sharing their transplant stories, serving as a narrative-based transplant education resource. This study will investigate if exposure to the LDSP changes patient readiness and motivation to pursue LDKT to ultimately increase the number of donor inquiries and donor evaluations. This study will also test if the LDSP serves as a health-literate and culturally safe education approach that can effectively support racialized communities who have a disproportionately higher need for LDKT.
Do I need to stop my current medications for this trial?
The trial information does not specify whether you need to stop taking your current medications.
What data supports the effectiveness of the treatment Storytelling, Narrative Interventions, Video Narratives for promoting kidney transplants?
Research shows that storytelling can evoke empathy and understanding, which may inspire changes in healthcare practices. Narrative storytelling has been suggested as a way to improve education about living donor kidney transplants, potentially increasing awareness and inspiring more people to consider becoming donors.12345
Is storytelling safe for use in promoting kidney transplants?
How is the storytelling treatment for kidney transplant promotion different from other treatments?
Storytelling for kidney transplant promotion is unique because it uses personal narratives (stories) from donors and recipients to educate and inspire potential donors, rather than relying solely on medical information. This approach helps people understand the emotional and personal aspects of kidney donation, which can encourage more individuals to consider becoming donors.258910
Eligibility Criteria
This trial is for patients with end-stage renal disease who are considering a Living Donor Kidney Transplant (LDKT). It aims to support racialized communities and address health equity. The study seeks participants open to learning through patient education materials.Inclusion Criteria
Exclusion Criteria
Timeline
Screening
Participants are screened for eligibility to participate in the trial
Intervention
Participants watch two storytelling videos from the Living Donation Storytelling Library in addition to standard of care patient education materials
Follow-up
Participants are monitored for changes in readiness, motivation, and actions towards pursuing LDKT
Treatment Details
Interventions
- Storytelling
Find a Clinic Near You
Who Is Running the Clinical Trial?
University of British Columbia
Lead Sponsor
Houston Methodist Transplant & Surgery Center of Excellence
Collaborator