Data Collection for Pediatric Hydrocephalus
What You Need to Know Before You Apply
What is the purpose of this trial?
This trial aims to gather data on children with hydrocephalus, a condition characterized by excess fluid buildup in the brain. By collecting information on various surgeries and treatments for hydrocephalus, researchers aim to understand the condition's progression and the effectiveness of current treatments. The goal is to improve care and guide future research. Children who have undergone any type of neurosurgical procedure for hydrocephalus, such as shunt placements or endoscopic procedures, are suitable candidates for this trial.
As an unphased trial, this study offers participants a unique opportunity to contribute to the foundational understanding of hydrocephalus treatments, potentially improving future care for children.
Why are researchers excited about this trial?
Researchers are excited about the HCRN Core Data Project because it aims to better characterize patient populations within the Hydrocephalus Clinical Research Network. This trial isn't about testing a specific treatment; instead, it's about gathering vital data that could lead to more personalized and effective treatment approaches for hydrocephalus. By understanding the unique characteristics of different patient groups, researchers hope to improve current treatment strategies and outcomes, making care more tailored and potentially more effective for individuals with this condition.
Who Is on the Research Team?
Jay Riva-Cambrin, MD
Principal Investigator
Alberta Children's Hospital
Abhaya Kulkarni, MD, PhD
Principal Investigator
Sick Children's Hospital, Toronto, Ontario
Tamara D Simon, MD, MSPH
Principal Investigator
University of Washington / Seattle Children's Hospital
Richard Holubkov, Ph.D.
Principal Investigator
University of Utah
Are You a Good Fit for This Trial?
Inclusion Criteria
Timeline for a Trial Participant
Screening
Participants are screened for eligibility to participate in the trial
Data Collection
Data about all neurosurgical hydrocephalus events is collected from the network Clinical Centers
Database Maintenance
Ongoing maintenance of the Core Data Project to understand variability, progression, and treatment practices
Follow-up
Participants are monitored for safety and effectiveness after data collection
What Are the Treatments Tested in This Trial?
Find a Clinic Near You
Who Is Running the Clinical Trial?
University of Utah
Lead Sponsor
National Institute of Neurological Disorders and Stroke (NINDS)
Collaborator
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