Health Information Collection for Desmoplastic Small Round Cell Tumor

Overseen By Shakeel Modak, MD

Age: Any Age

Sex: Any

Trial Phase: Academic

Sponsor: Memorial Sloan Kettering Cancer Center

Disqualifiers: Unwilling to provide consent

No Placebo Group All trial participants will receive the active study treatment (no placebo)

Compensation: Varies

Number of Visits: Unknown

250 Participants Needed

What You Need to Know Before You Apply

What is the purpose of this trial?

This trial focuses on collecting health information from individuals diagnosed with Desmoplastic Small Round Cell Tumor (DSRCT), a rare type of cancer. The goal is to create a database to help researchers better understand DSRCT and support future studies on the disease. This trial involves no treatment; it solely gathers data. Ideal participants are those diagnosed with DSRCT who are willing to share their health information over time.

As an unphased trial, participation offers a unique opportunity to contribute to a deeper understanding of this rare cancer, potentially aiding future research and treatments.

Do I need to stop my current medications to join the trial?

The trial information does not specify whether you need to stop taking your current medications. It is best to discuss this with the trial coordinators or your doctor.

Why are researchers excited about this trial?

This trial is unique because it aims to collect valuable health information about Desmoplastic Small Round Cell Tumor (DSRCT), rather than testing a specific treatment. Researchers are excited about this trial because it could uncover patterns and data that are currently unknown, potentially leading to better understanding of DSRCT. This data could eventually guide the development of more effective treatments and improve patient outcomes. By focusing on gathering comprehensive health information, this trial sets the foundation for future innovations in tackling this rare and challenging cancer.

Who Is on the Research Team?

Emily Slotkin, MD

Principal Investigator

Memorial Sloan Kettering Cancer Center

Are You a Good Fit for This Trial?

Inclusion Criteria

Participants must have a diagnosis of desmoplastic small round cell tumor Participants may be of any age as long as the appropriate consent and assent may be obtained

Willing to provide historical and longitudinal clinical data

Timeline for a Trial Participant

Screening

Participants are screened for eligibility to participate in the trial

2-4 weeks

Data Collection

Participants' health information is collected and entered into the registry for research purposes

7 years

Follow-up

Participants are monitored for ongoing data collection and updates to the registry

7 years

What Are the Treatments Tested in This Trial?

Interventions

• None

Who Is Running the Clinical Trial?

Memorial Sloan Kettering Cancer Center

Lead Sponsor

Trials

1,998

Recruited

602,000+