18 Participants NeededMy employer runs this trial

BMN 351 for Duchenne Muscular Dystrophy

Recruiting at 10 trial locations
Age: < 18
Sex: Male
Trial Phase: Phase 1 & 2
Sponsor: BioMarin Pharmaceutical
Must be taking: Steroids
No Placebo GroupAll trial participants will receive the active study treatment (no placebo)

What You Need to Know Before You Apply

What is the purpose of this trial?

This trial aims to test BMN 351, an experimental treatment for Duchenne Muscular Dystrophy (DMD), specifically targeting those with a genetic change that allows exon 51 skipping. The primary goal is to assess the treatment's safety and tolerability. Participants will receive varying doses, either once every two weeks or weekly, based on their group. The trial seeks boys aged 4 to 10 who can walk, do not require a ventilator, and have maintained a stable dose of steroids for the past 12 weeks. As a Phase 1/Phase 2 trial, this research focuses on understanding the treatment's effects and measuring its initial effectiveness in a smaller group.

Is there any evidence suggesting that BMN 351 is likely to be safe for humans?

Research has shown that BMN 351 was safe in early studies, with participants tolerating the treatment well. Initial results have been positive regarding safety, suggesting that BMN 351 might be safe for individuals with Duchenne Muscular Dystrophy (DMD), particularly those with a specific genetic mutation treatable by skipping exon 51. However, it is important to remember that this treatment remains under study, and ongoing research will provide more information about its safety.12345

Why do researchers think this study treatment might be promising for Duchenne Muscular Dystrophy?

Unlike the current treatments for Duchenne Muscular Dystrophy, which often involve corticosteroids to slow muscle degeneration, BMN 351 targets the disease differently. This new treatment is designed to address the genetic causes of the disease by modulating splicing of the dystrophin gene. Researchers are excited because BMN 351 offers a potential for more direct intervention at the genetic level, which could lead to more effective and longer-lasting results. Additionally, its varied dosing regimens, including high, medium, and low doses, allow for personalized treatment plans that could optimize outcomes for different patients.

What evidence suggests that BMN 351 might be an effective treatment for Duchenne Muscular Dystrophy?

Studies have shown that BMN 351 can increase levels of dystrophin, a crucial protein missing in boys with Duchenne Muscular Dystrophy (DMD). Increasing dystrophin may potentially slow the disease's progression. In tests with mice, BMN 351 improved heart and leg muscle conditions. Early trial results with boys have demonstrated that the treatment is safe and increases dystrophin levels. This trial will evaluate BMN 351 across different dosing regimens, including single and multiple ascending doses, to further assess its safety and effectiveness. These findings suggest that BMN 351 could be a helpful treatment for those with the exon 51 skipping mutation in DMD.23467

Are You a Good Fit for This Trial?

Inclusion Criteria

I am between 4 and 10 years old.
I have Duchenne muscular dystrophy with a gene change treatable by exon 51 skipping.
I can breathe without the help of a machine.
See 2 more

Timeline for a Trial Participant

Screening

Participants are screened for eligibility to participate in the trial

2-4 weeks

Treatment

Participants receive BMN 351 at escalating doses in different cohorts with varying dosing schedules

Up to 97 weeks
Weekly visits for dosing and safety assessments

Follow-up

Participants are monitored for safety and effectiveness after treatment

4 weeks

What Are the Treatments Tested in This Trial?

Interventions

  • BMN 351

How Is the Trial Designed?

4

Treatment groups

Experimental Treatment

Group I: Cohort 3Experimental Treatment1 Intervention
Group II: Cohort 2Experimental Treatment1 Intervention
Group III: Cohort 1BExperimental Treatment1 Intervention
Group IV: Cohort 1AExperimental Treatment1 Intervention

Find a Clinic Near You

Who Is Running the Clinical Trial?

BioMarin Pharmaceutical

Lead Sponsor

Trials
162
Recruited
115,000+
Alexander Hardy profile image

Alexander Hardy

BioMarin Pharmaceutical

Chief Executive Officer since 2023

MBA from INSEAD

Greg Friberg profile image

Greg Friberg

BioMarin Pharmaceutical

Chief Medical Officer

MD from New York Medical College

Citations

1.

pubmed.ncbi.nlm.nih.gov

pubmed.ncbi.nlm.nih.gov/39916519/

BMN 351-Induced Exon Skipping and Dystrophin ...

Compared with vehicle-treated hDMDdel52/mdx mice, BMN 351 ameliorated DMD-related histopathologic changes in the gastrocnemius muscle and heart.

An Open-Label Extension Study to Evaluate the Long-term ...

This open-label extension study aims to evaluate the long-term safety and tolerability of weekly BMN 351 infusions, as well as to assess the ...

Initial results from an open-label phase 1/2 study of BMN ...

Interim analyses demonstrated acceptable safety and positive dystrophin changes in boys with DMD receiving BMN 351 ≤9mg/kg. PS chemistry-based PK/PD modeling ...

A Phase 1/2 Study to Assess the Safety, Tolerability ...

The purpose of this study is to test the safety and tolerability of BMN 351 in participants with Duchenne Muscular Dystrophy (DMD) with a genetic mutation ...

BMN 351

BMN 351 is an exon skipping therapy for those amenable to exon 51 skipping. Status: A Phase 1/2 trial is actively recruiting Ex-US.

NCT06280209 | A Phase 1/2 Study to Assess the Safety, ...

The purpose of this study is to test the safety and tolerability of BMN 351 in participants with Duchenne Muscular Dystrophy (DMD) with a genetic mutation ...

A Phase 1/2 Study to Assess the Safety, Tolerability ...

The purpose of this study is to test the safety and tolerability of BMN 351 in participants with Duchenne Muscular Dystrophy (DMD) with a ...