74 Participants Needed

RO7248824 for Angelman Syndrome

Recruiting at 16 trial locations
RS
RS
Overseen ByReference Study ID Number: BP41674 https://forpatients.roche.com/
No Placebo GroupAll trial participants will receive the active study treatment (no placebo)

Trial Summary

Will I have to stop taking my current medications?

The trial requires that certain medications be stable for a period before joining. Sleep medications must be stable for 4 weeks, epilepsy medications for 12 weeks, and psychotropic medications for 4 weeks before screening. Antiplatelet or anticoagulant therapy should not be used for 2 weeks prior to screening.

What is the purpose of this trial?

This is a phase I, multicenter, non-randomized, adaptive, open-label, multiple ascending, intra-participant, dose-escalation study with a long-term extension (LTE) part and an optional open-label extension (OOE) part. The objective of the study is to investigate the safety, tolerability, PK and PD of RO7248824 administered intrathecally (IT) in participants with AS. Two linked sets of dose escalation cohorts are planned based on two different age groups, namely participants with AS aged ≥ 5 to ≤ 12 years in cohorts A1 to A5 (with at least 2 participants ≤ 8 years old in each cohort) and AS participants aged ≥ 1 to ≤ 4 years in cohorts B1 to B5. The two sets of cohorts will be run in parallel, with each cohort A1 to A5 preceding and gating the linked cohort B1 to B5 (e.g., A1 precedes B1).

Research Team

CT

Clinical Trials

Principal Investigator

Hoffmann-La Roche

Eligibility Criteria

This trial is for children with Angelman Syndrome (AS) aged 1 to 12 years who can undergo procedures under sedation or anesthesia. They must have a confirmed clinical diagnosis of AS, be able to tolerate blood draws, and have a caregiver willing to comply with study requirements. Participants should not be pregnant or breastfeeding and must meet certain contraceptive requirements.

Inclusion Criteria

A caregiver must be able to consent for the participant according to International Council on Harmonisation (ICH) and local regulations
Ability to comply with all study requirements
I can have procedures under sedation as needed.
See 9 more

Exclusion Criteria

Conditions that would make the participant unsuitable for inclusion or could interfere with the study
I haven't been hospitalized for a major procedure under general anesthesia in the last 3 months.
Concurrent or planned participation in other clinical studies without a signed data sharing agreement
See 13 more

Timeline

Screening

Participants are screened for eligibility to participate in the trial

2-4 weeks

Treatment

Multiple ascending dose (MAD) phase where participants receive RO7248824 intrathecally

52 weeks

Long-term extension (LTE)

Participants continue to receive RO7248824 to assess long-term safety and efficacy

156 weeks

Open-label extension (OOE)

Participants in the LTE part of the study will be given the opportunity to participate in the OOE part

60 weeks

Follow-up

Participants are monitored for safety and effectiveness after treatment

4 weeks

Treatment Details

Interventions

  • RO7248824
Trial Overview The trial tests the safety and effects of RO7248824 in children with AS. It's an open-label study where doses increase within participants based on age groups: ≥5 to ≤12 years for one set of cohorts, and ≥1 to ≤4 years for another. Each older cohort precedes a younger one, ensuring safety before advancing.
Participant Groups
19Treatment groups
Experimental Treatment
Group I: OOE: RO7248824Experimental Treatment1 Intervention
Participants in the LTE part of the study will be given the opportunity to participate in the OOE part.
Group II: LTE: Cohort EB4 RO7248824Experimental Treatment1 Intervention
Participants continuing from MAD Cohort B5
Group III: LTE: Cohort EB3 RO7248824Experimental Treatment1 Intervention
Participants continuing from MAD cohorts B3 and B4
Group IV: LTE: Cohort EB2 RO7248824Experimental Treatment1 Intervention
Participants continuing from MAD cohorts B1 and B2
Group V: LTE: Cohort EB1 RO7248824Experimental Treatment1 Intervention
New participants (age 1-4) enrolling directly into the LTE
Group VI: LTE: Cohort EA4 RO7248824Experimental Treatment1 Intervention
Participants continuing from MAD Cohort A5
Group VII: LTE: Cohort EA3 RO7248824Experimental Treatment1 Intervention
Participants continuing from MAD cohorts A3 and A4
Group VIII: LTE: Cohort EA2 RO7248824Experimental Treatment1 Intervention
Participants continuing from multiple ascending dose (MAD) cohorts A1 and A2
Group IX: LTE: Cohort EA1 RO7248824Experimental Treatment1 Intervention
New participants (age 5-12) enrolling directly in the LTE part
Group X: Cohort B5 RO7248824Experimental Treatment1 Intervention
Participants 1-4 years
Group XI: Cohort B4 RO7248824Experimental Treatment1 Intervention
Participants 1-4 years
Group XII: Cohort B3 RO7248824Experimental Treatment1 Intervention
Participants 1-4 years
Group XIII: Cohort B2 RO7248824Experimental Treatment1 Intervention
Participants 1-4 years
Group XIV: Cohort B1 RO7248824Experimental Treatment1 Intervention
Participants 1-4 years
Group XV: Cohort A5 RO7248824Experimental Treatment1 Intervention
Participants 5-12 years
Group XVI: Cohort A4 RO7248824Experimental Treatment1 Intervention
Participants 5-12 years
Group XVII: Cohort A3 RO7248824Experimental Treatment1 Intervention
Participants 5-12 years
Group XVIII: Cohort A2 RO7248824Experimental Treatment1 Intervention
Participants 5-12 years
Group XIX: Cohort A1 RO7248824Experimental Treatment1 Intervention
Participants 5-12 years

Find a Clinic Near You

Who Is Running the Clinical Trial?

Hoffmann-La Roche

Lead Sponsor

Trials
2,482
Recruited
1,107,000+
Headquarters
Basel, Switzerland
Known For
Precision medicine
Top Products
Avastin, Herceptin, Rituxan, Accu-Chek
Dr. Levi Garraway profile image

Dr. Levi Garraway

Hoffmann-La Roche

Chief Medical Officer since 2019

MD from the University of Basel

Dr. Thomas Schinecker profile image

Dr. Thomas Schinecker

Hoffmann-La Roche

Chief Executive Officer since 2023

PhD in Molecular Biology from New York University

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