Dr. Russell Butterfield, MD, PhD
Claim this profileUniversity of Utah
Studies Duchenne Muscular Dystrophy
Studies Myelodysplastic Syndrome
6 reported clinical trials
8 drugs studied
Area of expertise
1Duchenne Muscular Dystrophy
dystrophin positive
DMD negative
DMD positive
2Myelodysplastic Syndrome
DMD negative
DMD positive
Affiliated Hospitals
Clinical Trials Russell Butterfield, MD, PhD is currently running
Zolgensma
for Spinal Muscular Atrophy
Spinal muscular atrophy (SMA) is a neurogenetic disorder caused by a loss or mutation in the survival motor neuron 1 gene (SMN1) on chromosome 5q13, which leads to reduced SMN protein levels and a selective dysfunction of motor neurons. SMA is an autosomal recessive, early childhood disease with an incidence of 1:10,000 live births. SMA is the leading cause of infant mortality due to genetic diseases. The purpose of this registry is to assess the long term outcomes of patients with SMA in the context of advances in treatment options and also to characterize and assess long-term safety and effectiveness of OAV-101.
Recruiting1 award N/A2 criteria
Motor Outcomes Evaluation
for Facioscapulohumeral Muscular Dystrophy
The primary goal of this proposal is to collect motor and functional outcomes specific to FSHD over time. By collecting measures specific to FSHD, this will help ensure the best level of clinical care is being provided. Also, the hope is to speed up drug development by gaining a better understanding of how having FSHD impacts motor function and other health outcomes (i.e. breathing, wheelchair use, etc.) and how big a change in motor function would be clinically meaningful to those with FSHD. Motor Outcomes to Validate Evaluations in FSHD (MOVE FSHD) will have approximately 450 FSHD participants followed for a minimum of 3 years. A subset of MOVE FSHD participants, approximately 200, will participate in the MOVE+ sub-study which includes whole body MRI and reachable workspace, as well as optional muscle biopsy and wearable device (US participants only).
Recruiting1 award N/A1 criteria
More about Russell Butterfield, MD, PhD
Clinical Trial Related4 years of experience running clinical trials · Led 6 trials as a Principal Investigator · 2 Active Clinical TrialsTreatments Russell Butterfield, MD, PhD has experience with
- Placebo
- DYNE-251
- Motor Outcomes To Validate Evaluations In FSHD (MOVE FSHD)
- CAP-1002
- Prospective Observational Registry
- Zolgensma
Breakdown of trials Russell Butterfield, MD, PhD has run
Duchenne Muscular Dystrophy
Myelodysplastic Syndrome
Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
Disuse Atrophy
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Frequently asked questions
Do I need insurance to participate in a trial?
Almost all clinical trials will cover the cost of the ‘trial drug’ — so no insurance is required for this. For trials where this trial drug is given alongside an already-approved medication, there may be a cost (which your insurance would normally cover).
What does Russell Butterfield, MD, PhD specialize in?
Russell Butterfield, MD, PhD focuses on Duchenne Muscular Dystrophy and Myelodysplastic Syndrome. In particular, much of their work with Duchenne Muscular Dystrophy has involved dystrophin positive patients, or patients who are DMD negative.
Is Russell Butterfield, MD, PhD currently recruiting for clinical trials?
Yes, Russell Butterfield, MD, PhD is currently recruiting for 2 clinical trials in Salt Lake City Utah. If you're interested in participating, you should apply.
Are there any treatments that Russell Butterfield, MD, PhD has studied deeply?
Yes, Russell Butterfield, MD, PhD has studied treatments such as Placebo, DYNE-251, Motor Outcomes to Validate Evaluations in FSHD (MOVE FSHD).
What is the best way to schedule an appointment with Russell Butterfield, MD, PhD?
Apply for one of the trials that Russell Butterfield, MD, PhD is conducting.
What is the office address of Russell Butterfield, MD, PhD?
The office of Russell Butterfield, MD, PhD is located at: University of Utah, Salt Lake City, Utah 84132 United States. This is the address for their practice at the University of Utah.
Is there any support for travel costs?
The coverage of travel expenses can vary greatly between different clinical trials. Please see more financial detail in the trials you’re interested to apply.
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