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Virtual Peer Support for Neuromuscular Disease
Study Summary
This trial is looking at whether peer support can help people who rely on a ventilator at home, and their caregivers.
Timeline
Treatment Details
Study Objectives
Outcome measures can provide a clearer picture of what you can expect from a treatment.Trial Design
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Who is running the clinical trial?
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- Group 1: Intervention
- Group 2: Control
- No Placebo-Only Group - All patients enrolled in this study will receive some form of active treatment.
- Screening: It may take up to 3 Weeks to process to see if you qualify in this trial.
- Treatment: The duration you will receive the treatment varies.
- Follow Ups: You may be asked to continue sharing information regarding the trial for 6 Months after you stop receiving the treatment.
Frequently Asked Questions
How many human participants are currently engaged in this clinical evaluation?
"Affirmative. According to the information made available on clinicaltrials.gov, this medical research is currently in need of participants and was initially posted on September 15th 2022 with a subsequent update being issued on September 23rd 2022. The trial needs 100 recruits from one location."
Are there any currently available openings in this research project?
"Reportedly, this trial is accepting participants. It was first reported to clinicaltrials.gov on September 15th 2022 and the most recent edit to it occurred 9 days later."
What are the primary objectives of this research project?
"This 24-week trial aims to assess Family Caregiver (FC) mastery through the Pearlin Mastery Scale (PMS). Secondary objectives encompass determining Family Caregiver Burden and Stress, as indicated by Zarit Burden Interview scores up to 88; gauging of Caregiver Competency with the four itemed Caregiving Competence Scale, having a range from 4 - 16 where higher indicates greater competency; and exploring qualitative interviews on family caregivers' experience with virtual peer support."
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